ReviewHealthcare (Basel, Switzerland)2019
A Review of the Complex Role of Family Caregivers as Health Team Members and Second-Order Patients.
Review in Healthcare (Basel, Switzerland), 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 56 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
56 citing papers in PubMed, 3 syntheses or guidelines pooled it, 124 citations in OpenAlex.
- Decision-making factors related to palliative care and hospice use in the community: a systematic review based on Andersen's behavioural model of health services use.BMC palliative care · 2025Pooled it
- Family Resilience in Adult Oncology: A Systematic Review and Meta-Analysis.Oncology nursing forum · 2025Pooled it
- Experiences and Perceptions of Medication Management Communication During Transitions of Care for Residents in Aged Care Homes and Their Caregivers: A Qualitative Meta-Synthesis.Journal of clinical nursing · 2025Pooled it
- Stress Reduction in Perioperative Care: Feasibility Randomized Controlled Trial.Journal of medical Internet research · 2025Trial
- Assessing Quality of Life and Associated Factors Among Caregivers of Children With Chronic Conditions at Tamale Teaching Hospital: A Cross-Sectional Study.Health science reports · 2026Article
- A qualitative exploration of informal carers' experiences with medication management and accessing community pharmacy support for people with long-term conditions.Exploratory research in clinical and social pharmacy · 2026Article
- Rural Patients' Transitional Care Experiences: A Qualitative Analysis of Provider Notes.The Journal of rural health : official journal of the American Rural Health Association and the National Rural Health Care Association · 2026Article
- The holistic burden of Huntington's disease: A qualitative study of multigenerational impact on individuals and family caregivers across Europe.Journal of Huntington's disease · 2026Article
- Prognostic factors of survival in corticobasal syndrome and corticobasal degeneration: A scoping review.Neurological sciences : official journal of the Italian Neurological Society and of the Italian Society of Clinical Neurophysiology · 2026Article
- The family caregiver experience in palliative care pathways: a multidimensional framework.BMC health services research · 2026Article
- Caregivers' knowledge, attitudes, and practices regarding postpartum depression: a cross-sectional study.Scientific reports · 2026Article
- Building rehabilitation care capacity for older adults living in long-term care through family/care partner and physical therapist engagement: a scoping review.BMC geriatrics · 2026Article
- Bereavement Support for Oncology Nurses Caring for Patients and Families.Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association · 2026Article
- Family caregiver experiences in terminal cancer: a qualitative study in palliative care.BMC palliative care · 2026Article
- Caregiver satisfaction with early integrated palliative care in oncology: secondary outcomes from the PALLiON cluster-RCT.Frontiers in oncology · 2026Article
- The Value of Implicitness: An Empirical Ethics Analysis of Indonesian Everyday Family Involvement in a Palliative Care Setting.Asian bioethics review · 2026Article
- Investigating factors enabling the acceptability of perennial malaria chemoprevention implementation in Osun State, Nigeria: evidence from a qualitative process evaluation.Malaria journal · 2025Article
- Aspects of dignity in family caregivers of persons suffering from multiple sclerosis.International journal of qualitative studies on health and well-being · 2025Article
- The Dyadic Experience of a New Breast Cancer Diagnosis Into the Shared Decision-Making Process: A Qualitative Analysis.Psycho-oncology · 2025Article
- Elements of burden among informal caregivers of community-dwelling older adults receiving home care nursing: a cross-sectional study on health status, well-being, and gender differences.BMC geriatrics · 2025Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
1 author at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
In Palliative Care, the unit of care is the patient and their family. Although members of the health care team often address the family caregiver's opinions and concerns, the focus of care remains on the needs of the patient. The readiness and willingness of the family caregiver is often overlooked as they are expected to assume a complex caregiving role. When family caregivers are not intellectually or emotionally prepared or physically capable, the caregiver is at high risk for serious health issues and cognitive, emotional, and physical decline particularly as caregiving extends over time. Family caregivers are often a neglected and at-risk population. Illustrated through the use of a case study, this article addresses the complex role of family caregivers, as both health team members and second-order patients. It emphasizes the importance of family assessment and interventions to balance the burdens and benefits of family caregiving and protect caregivers' health and well-being.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.