ArticleGeriatrics (Basel, Switzerland)2016
Family Carers of People with Young-Onset Dementia: Their Experiences with the Supporter Service.
Article in Geriatrics (Basel, Switzerland), 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.
What it found
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Who cites it
3 citing papers in PubMed, 12 citations in OpenAlex.
- In It Together: A Qualitative Meta-Synthesis of Common and Unique Psychosocial Stressors and Adaptive Coping Strategies of Persons With Young-Onset Dementia and Their Caregivers.The Gerontologist · 2022Article
- Metaphors for the Meaning of Caring for a Spouse with Dementia.Journal of multidisciplinary healthcare · 2021Article
- "To be, or not to be": experiencing deterioration among people with young-onset dementia living alone.International journal of qualitative studies on health and well-being · 2018Article
Corrections and comments
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Authors and funding
3 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundFamily carers and people with young-onset dementia (YOD) require tailored assistance as dementia progresses. A variety of health care services is needed, including supporter services. To our knowledge, research focusing on experiences with the supporter service is scarce.
aimTo evaluate the supporter service by examining how primary family carers experience the assistance provided.
methodQualitative interviews with 16 primary family carers of people with YOD were performed from 2014 to 2015. Content analysis was used to analyze the data.
resultsThree main themes emerged from the interviews. First, a good match focused on the carers' experiences of the relationship between the supporter and the person with YOD and included three subthemes: a nice, empathetic personality, a friendship-like relationship, and the content of the meetings. The second theme, relief, addressed the carers' experiences with the service. The third, coordination, concerned the carers' relationship with the health care service.
conclusionDeveloping tailored services and assistance initiatives is important. A well-organized supporter service is a valuable supplement to formal programs and should be developed as part of an overall support package.
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Registered trials
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