ArticleBMC public health2019
Living with a spouse with chronic illness - the challenge of balancing demands and resources.
Article in BMC public health, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
16 citing papers in PubMed, 5 citations in OpenAlex.
- Trial
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- Conducting Couple Interviews in Health Research: Methodological Lessons from Later-Life Caregiving Dyads.Healthcare (Basel, Switzerland) · 2026Article
- Article
- Key Factors Associated With Nonuse of Telemedicine in Patients With Hypertension and/or Diabetes: Findings From the 2023 Indonesia Health Survey.International journal of telemedicine and applications · 2026Article
- Triadic relationships in home care nursing: an integrative review of the views and experiences of older couples and nurses.BMC nursing · 2025Article
- Exploring Partners, Parenting and Pregnancy Thinking in Late Adolescents and Young Adults with Inherited Metabolic Disorders.Pediatric reports · 2025Article
- Resonance, self-reflection, and preparedness through a web-based intervention for family caregivers of patients with life-threatening illness receiving specialised home care.Palliative & supportive care · 2025Article
- Chronic Illness and Social Network Bridging in Later Life.Social networks · 2023Article
- "Negotiating a new normality" - a longitudinal qualitative exploration of the meaning of living with an open surgical wound.International journal of qualitative studies on health and well-being · 2022Article
- When should palliative care be introduced for people with progressive fibrotic interstitial lung disease? A meta-ethnography of the experiences of people with end-stage interstitial lung disease and their family carers.Palliative medicine · 2022Article
- Intertwined like a double helix: A meta-synthesis of the qualitative literature examining the experiences of living with someone with multiple sclerosis.Health expectations : an international journal of public participation in health care and health policy · 2022Review
- Impact of economic factors, social health and stressful life events on physical health-related quality of life trajectories in older Australians.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2022Article
- Heavy alcohol consumption before and after negative life events in late mid-life: longitudinal latent trajectory analyses.Journal of epidemiology and community health · 2022Article
- Living with Long Term Conditions from the Perspective of Family Caregivers. A Scoping Review and Narrative Synthesis.International journal of environmental research and public health · 2021Article
- Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThe number of partners providing informal care for their chronically ill spouse is rising, and they describe their daily life as demanding. The aim of this paper was to describe the partners' experiences of living with a person with chronic illness and how they manage everyday life.
methodsA descriptive design with a qualitative approach was used. A purposive sample of 16 Swedish partners with a chronically ill spouse were interviewed. The interviews were recorded, transcribed, and analyzed using qualitative content analysis.
resultsFour main themes were identified: 'Managing challenges in daily life,' 'Seeking support and use own capabilities to manage life,' 'Appreciating the good parts of life' and 'Adapting to constant changes and an uncertain future'. Their experiences of support from formal care providers varied; they expressed the need for more assistance from the health care sector.
conclusionsThe partners experienced many challenges in everyday life when providing informal care for their chronically ill spouse. This affected both their physical and psychological health, as they had limited time for themselves. The partners seemed to receive more support from their informal network than from formal care providers. In handling daily life, the partners balanced demands and resources to identify possibilities to move forward and find meaning in life. This is congruent with theories by Antonovsky, and Folkman and Lazarus that describes meaningfulness and how to handle challenges in everyday life.
Indexed as
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.