Trial reportPloS one2019
Barriers and facilitators of communication about off periods in Parkinson's disease: Qualitative analysis of patient, carepartner, and physician Interviews.
Trial report in PloS one, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
21 citing papers in PubMed, 1 synthesis or guideline pooled it, 35 citations in OpenAlex.
- Care partner needs in Parkinson's disease: A systematic review of qualitative and quantitative data.Journal of Parkinson's disease · 2025Pooled it
- Identification of perception gaps between physicians and patients with neurological diseases and the prediction of these gaps using machine learning.Scientific reports · 2026Observational
- Far from being the end of the road: taking a closer look at neuropalliative care in Parkinson's disease.Journal of neural transmission (Vienna, Austria : 1996) · 2025Review
- Understanding the Patient Experience of Advanced Parkinson's Disease: Qualitative Research with Patients and Expert Clinicians to Identify Symptoms and Associated Health-Related Quality of Life Impacts.Neurology and therapy · 2025Article
- In Their Own Words: Creating Connections Through Narrative Medicine.Journal of patient experience · 2025Article
- Advanced Parkinson's disease treatment patterns in Italy: an observational study interim analysis.Annals of medicine · 2024Observational
- Holding back in communications with clinicians: Patient and care partner perspectives in Parkinson's disease.PEC innovation · 2024Article
- Real-World Experiences of Parkinson's Disease OFF Time and Role of Demographics.Journal of patient-centered research and reviews · 2024Article
- A Qualitative Study on Perspectives of Parkinson's Disease Medications: Insights from Patient Focus Groups.Patient preference and adherence · 2024Article
- Feasibility of a wearable inertial sensor to assess motor complications and treatment in Parkinson's disease.PloS one · 2023Observational
- Living with Parkinson's disease: disease and medication experiences of patients and caregivers.International journal of qualitative studies on health and well-being · 2022Article
- Communication strategies used by Parkinson's nurse specialists during healthcare interactions: A qualitative descriptive study.Journal of advanced nursing · 2022Article
- Should "on-demand" treatments for Parkinson's disease OFF episodes be used earlier?Clinical parkinsonism & related disorders · 2022Review
- Use of Figurative Language by People With Parkinson Disease to Describe "Off" Periods: Clear as Mud.Neurology. Clinical practice · 2021Article
- Impact of Off Periods on Persons With Parkinson Disease and Care Partners: A Qualitative Study.Neurology. Clinical practice · 2021Article
- Article
- The Experience of OFF Periods in Parkinson's Disease: Descriptions, Triggers, and Alleviating Factors.Journal of patient-centered research and reviews · 2021Article
- The Most Bothersome Aspects ofMovement disorders clinical practice · 2020Article
- Communication About OFF Periods in Parkinson's Disease: A Survey of Physicians, Patients, and Carepartners.Frontiers in neurology · 2019Article
- The experience ofClinical parkinsonism & related disorders · 2019Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 3 institutions in 2 countries.
Funding
Abstract
backgroundSuccessful patient-physician communication is critical for improving health outcomes, but research regarding optimal communication practices in Parkinson's disease is limited. The objective of the current study was to investigate barriers and facilitators of communication between persons with Parkinson's disease, carepartners, and physicians, specifically in the setting of off periods, with the goal of identifying ways to improve patient-carepartner-physician communication.
methodWe interviewed persons with Parkinson's, carepartners, and physicians (specialists and non-specialists) using a semi-structured questionnaire to identify and describe experiences, barriers, and facilitators relating to communication about off periods in Parkinson's disease. We used a qualitative descriptive approach to analyze interview transcripts and compare themes between participating groups.
resultsTwenty persons with Parkinson's and their carepartners and 20 physicians (10 specialists, 10 non-specialists) participated in interviews. Identified communication barriers included patient-level (e.g. cognitive impairment, reluctance to discuss symptoms), caregiver-level (e.g. caregiver absence), and physician-level (e.g. distraction by technology, lack of appreciation of the burden of off periods) factors. Other barriers included the challenging nature of off periods themselves. Positive physician characteristics such as empathy, respect, and taking time to listen were major facilitators of communication regarding off periods. Persons with Parkinson's, carepartners, and physicians described using various tools (e.g. home diaries, questionnaires, mobile phone videos) to aid communication regarding off periods but participants identified a need for more formal educational materials.
conclusionsPhysicians caring for persons with Parkinson's can improve communication through more patient-centered practice but there is a need for improved educational tools regarding off periods. Further research is needed to identify optimal strategies for communication about off periods and preferred approaches for off period education.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.