Evidence map›Paper›PMID 30998222›Full record

ReviewJMIR mHealth and uHealth2019

The Potential of Self-Management mHealth for Pediatric Cystic Fibrosis: Mixed-Methods Study for Health Care and App Assessment.

Antonio Martinez-Millana, Annabel Zettl, Jacqueline Floch, Joaquim Calvo-Lerma, Jose Luis Sevillano, Carmen Ribes-Koninckx, Vicente Traver

Open access · goldAbstract readReview
In one paragraph

Review in JMIR mHealth and uHealth, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
5.0field-weighted citation impact, top 5% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 20 citations in OpenAlex.

  1. Article
  2. Artificial Intelligence in Health Care: Bibliometric Analysis.Journal of medical Internet research · 2020
    Article
  3. The future of cystic fibrosis care: a global perspective.The Lancet. Respiratory medicine · 2020
    Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 3 institutions in 2 countries.

Antonio Martinez-MillanaInstituto ITACA, Universitat Politècnica de València, Valencia, Spain.ORCID 0000-0003-1056-5067
Annabel ZettlYouse GmbH, München, Germany.ORCID 0000-0003-1939-1630
Jacqueline FlochSINTEF, Trondheim, Norway.ORCID 0000-0003-4939-586X
Joaquim Calvo-LermaInstituto de Investigación Sanitaria La Fe, Valencia, Spain.ORCID 0000-0001-7818-0652
Jose Luis SevillanoDepartment of Architecture and Technology of Computers, University of Seville, Seville, Spain.ORCID 0000-0002-1392-1832
Carmen Ribes-KoninckxInstituto de Investigación Sanitaria La Fe, Valencia, Spain.ORCID 0000-0002-0038-6324
Vicente TraverInstituto ITACA, Universitat Politècnica de València, Valencia, Spain.ORCID 0000-0003-1806-8575
Instituto de Investigación Sanitaria La Fe · ESSINTEF · NOUniversidad de Sevilla · ES

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundRemote care services and patient empowerment have boosted mobile health (mHealth). A study of user needs related to mHealth for pediatric cystic fibrosis (PCF) identified the set of preferred features mobile apps should support; however, the potential use of PCF apps and their suitability to fit into PCF clinical management remains unexplored.

objectiveWe examine whether PCF holds potential for the implementation of mHealth care.

methodsThe study is based on a literature review and qualitative analysis of content and was conducted in two parts: (1) we reviewed scientific and gray literature to explore how European countries manage PCF and conducted a qualitative study of 6 PCF units and (2) we performed a systematic review of apps available in the myhealthapps.net repository searching for cystic fibrosis (CF) management and nutrition apps, which we analyzed for characteristics, business models, number of downloads, and usability.

resultsEuropean CF routine care guidelines are acknowledged in most European countries, and treatments are fully covered in almost all countries. The majority of teams in CF units are interdisciplinary. With respect to the systematic review of apps, we reviewed 12 apps for CF management and 9 for general nutrition management in the myhealthapps.net directory. All analyzed apps provided functionalities for recording aspects related to the disease and nutrition such as medication, meals, measurements, reminders, and educational material. None of the apps reviewed in this study supported pancreatic enzyme replacement therapy. CF apps proved to be less appealing and usable than nutrition apps (2.66 [SD 1.15] vs 4.01 [SD 0.90]; P<.001, z-value: -2.6). User needs detected in previous research are partially matched by current apps for CF management.

conclusionsThe health care context for PCF is a unique opportunity for the adoption of mHealth. Well-established clinical guidelines, heterogeneous clinical teams, and coverage by national health care systems provide a suitable scenario for the use of mHealth solutions. However, available apps for CF self-management do not cover essential aspects such as nutrition and education. To increase the adoption of mHealth for CF self-management, new apps should include these features. INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID): RR2-10.1136/bmjopen-2016-014931.

Indexed as

Cystic FibrosisEuropeHumansMobile ApplicationsSelf-ManagementTelemedicineappscystic fibrosishealth care systemsmarket analysismHealthuser requirements

Identifiers

PMID30998222
PMCPMC6495294
OpenAlexW2926647542

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.