ArticleJournal of cancer survivorship : research and practice2019
Limited evidence of non-response bias despite modest response rate in a nationwide survey of long-term cancer survivors-results from the NOR-CAYACS study.
Article in Journal of cancer survivorship : research and practice, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
19 citing papers in PubMed.
- Anticipating incomplete patient-reported outcomes in schizophrenia: a machine learning approach to predict the occurrence of missing data.Health and quality of life outcomes · 2026Article
- The association of cancer-related fatigue on the social, vocational and healthcare-related dimensions of cancer survivorship.Journal of cancer survivorship : research and practice · 2025Article
- Patient-reported outcomes after treatment for rectal cancer-A prospective nationwide study.Colorectal disease : the official journal of the Association of Coloproctology of Great Britain and Ireland · 2024Article
- Profiles of Fatigue and Psychological Symptoms in Long-Term Childhood, Adolescent, and Young Adult Cancer Survivors-The NOR-CAYACS Study.Cancer medicine · 2024Article
- Experiences Using Nonpharmacological Interventions for Chronic Fatigue: A Focus Group Study of Long-Term Survivors of Young Adult Cancers With Fatigue.Cancer reports (Hoboken, N.J.) · 2024Article
- Missingness mechanisms and generalizability of patient reported outcome measures in colorectal cancer survivors - assessing the reasonableness of the "missing completely at random" assumption.BMC medical research methodology · 2024Article
- Comparison between Endoscopic Submucosal Dissection and Surgery in Patients with Early Gastric Cancer.Cancers · 2022Article
- A study of high neuroticism in long-term survivors of childhood, adolescence, and young adult cancers.Scientific reports · 2022Article
- Reply to "raised concern".Industrial health · 2022Article
- "I don't take for granted that I am doing well today": a mixed methods study on well-being, impact of cancer, and supportive needs in long-term childhood cancer survivors.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2022Article
- Article
- The impact of COVID-19 on complementary and alternative medicine providers: A cross-sectional survey in Norway.Advances in integrative medicine · 2021Article
- Article
- Fear of cancer recurrence among young adult cancer survivors-exploring long-term contributing factors in a large, population-based cohort.Journal of cancer survivorship : research and practice · 2021Article
- Self-reported late effects and long-term follow-up care among 1889 long-term Norwegian Childhood, Adolescent, and Young Adult Cancer Survivors (the NOR-CAYACS study).Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2021Article
- Comparison of Young Adult Female Cancer Survivors Recruited from a Population-Based Cancer Registry to Eligible Survivors.Cancer epidemiology, biomarkers & prevention : a publication of the American Association for Cancer Research, cosponsored by the American Society of Preventive Oncology · 2021Article
- Determinants of cardiorespiratory fitness in very long-term survivors of allogeneic hematopoietic stem cell transplantation: a national cohort study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2021Article
- How Supervisor-Subordinate Guanxi Influence Employee Innovative Behavior: A Moderated Mediation Model.Psychology research and behavior management · 2021Article
- Lifestyle among long-term survivors of cancers in young adulthood.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2021Article
Corrections and comments
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Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeDeclining response rates threaten the generalizability of health surveys. We investigate (1) the effect of item order on response rate; (2) characteristics of early , late and non-responders; and (3) potential non-response bias in a population-based health survey of childhood, adolescent and young adult cancer survivors (CAYACS).
methodsWe mailed a questionnaire survey to 5361 eligible CAYACS identified by the Cancer Registry of Norway (CRN), representing a range of cancer diagnoses. The 302-item questionnaire included a range of survivorship-related questions and validated patient-reported outcome measures. To investigate item-order effects on response rates, we constructed two versions of the questionnaire presenting cancer-related or socio-demographic items first. The CRN provided demographic and clinical information for the total population. Risk of non-response bias was estimated by (1) comparing outcomes between early and late responders (answered after a reminder), and (2) by applying inverse probability of participation weights to construct a total population (with 100% response) and then compare 21 a priori selected outcomes between early responders, all responders (early + late) and the total population (all eligible).
resultsSurvey item order did not affect response rates (cancer first 49.8% vs socio-demographic first 50.2%). Shorter time since diagnosis, male gender and a malignant melanoma diagnosis remained significant predictors of non-response in a multivariable multinomial regression model. There were no significant differences on 16/21 survey outcomes between early and late responders, and 18/21 survey outcomes between early responders, all responders and the total population.
conclusionDespite a modest response rate, we found little evidence for a response bias in our study. IMPLICATIONS FOR CANCER SURVIVORS: Surveys of survivor-reported outcomes with low response rates may still be valuable and generalizable to the total survivor population.
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