ArticleBMC medicine2019
Data management and sharing policy: the first step towards promoting data sharing.
Article in BMC medicine, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 26 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
26 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Challenges and Opportunities for Data Sharing Related to Artificial Intelligence Tools in Health Care in Low- and Middle-Income Countries: Systematic Review and Case Study From Thailand.Journal of medical Internet research · 2025Pooled it
- Factors influencing intra-group data sharing in China's central state-owned enterprises: An information ecology perspective.PloS one · 2026Article
- Experiences of Health Research Data Sharing Among Researchers in Sub-Saharan Africa: Cross-Sectional Study.JMIR formative research · 2025Article
- Navigating the new NIH Data Management Sharing plan: the NIH HEAL Initiative Data2Action DMPTool template.JAMIA open · 2025Article
- Call for a fairer approach to authorship in publishing biomedical research.Communications medicine · 2025Review
- Provide proactive reproducible analysis transparency with every publication.Royal Society open science · 2025Article
- Toward Better Semantic Interoperability of Data Element Repositories in Medicine: Analysis Study.JMIR medical informatics · 2024Article
- Article
- Progress in the application of artificial intelligence in skin wound assessment and prediction of healing time.American journal of translational research · 2024Review
- Defining a malaria diagnostic pathway from innovation to adoption: Stakeholder perspectives on data and evidence gaps.PLOS global public health · 2024Article
- Data sharing and reuse in clinical research: Are we there yet? A cross-sectional study on progress, challenges and opportunities in LMICs.PLOS global public health · 2024Article
- Proceedings from the CIHLMU 2022 Symposium: "Availability of and Access to Quality Data in Health".BMC proceedings · 2023Article
- Tuberculosis control in the face of emerging infectious diseases: Highlights from the 7th South African Tuberculosis Conference.Public health challenges · 2023Article
- Systematic reviewers' perspectives on sharing review data, analytic code, and other materials: A survey.Cochrane evidence synthesis and methods · 2023Article
- Investigating the Secondary Use of Clinical Research Data: Protocol for a Mixed Methods Study.JMIR research protocols · 2023Article
- What constitutes equitable data sharing in global health research? A scoping review of the literature on low-income and middle-income country stakeholders' perspectives.BMJ global health · 2023Article
- Sharing results with participants (and community) in malaria related research: Perspectives and experience from researchers.PLOS global public health · 2023Article
- FAIR research data management as community approach in bioengineering.Engineering in life sciences · 2023Article
- Perceptions and Opinions Towards Data-Sharing: A Survey of Addiction Journal Editorial Board Members.The journal of scientific practice and integrity · 2022Article
- Open science practices in general and internal medicine journals, an observational study.PloS one · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
Abstract
backgroundHealth-related research funders, regulators and journals expect that de-identified individual-level health data be shared widely, with as few restrictions as possible; yet, in reality, the volume of shared data remains low. MAIN BODY: Health researchers and other data producers are reluctant to share their data unless they are confident that their datasets are of high quality and reliable, and that they are used in accordance with the values and aims of their institutions. We argue that having an institutional, departmental or group data management and sharing policy is the first step towards encouraging researchers and healthcare professionals to share their data more widely. Our paper outlines the elements of a data management and sharing policy, which should include aims consistent with those of the institution as well as with data management procedures, models of data sharing, request procedures, consent models and cost recovery mechanisms. A policy would help an institution, department or group maximise the use of its data and protect the interests of the institution and its members. We base our recommendations on our experience collecting and curating data for large clinical trials conducted in low- and middle-income countries, facilitating the sharing of datasets with secondary users, whilst teaching data management and conducting empirical research on data sharing. Although the fundamentals of a policy are general, the paper is focused on the low- and middle-income country context.
conclusionWe argue that having an institutional, departmental or group data management and sharing policy is the first step in promoting data sharing.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.