ArticleBMC pregnancy and childbirth2019
Pregnancy and infant loss: a survey of families' experiences in Ontario Canada.
Article in BMC pregnancy and childbirth, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers.
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Who cites it
24 citing papers in PubMed.
- Article
- Inequities in Care During Pregnancy Loss: Empirical Insights From Experiences With Canadian Perinatal Care.Birth (Berkeley, Calif.) · 2026Article
- Time to change Canada's stillbirth definition and regulatory framework.CMAJ : Canadian Medical Association journal = journal de l'Association medicale canadienne · 2026Article
- Predictive Potential of Red Blood Cell Distribution Width and Platelet Ratio (RDW/PLT) in Early Pregnancy Loss.International journal of women's health · 2026Article
- A scoping review of the perinatal healthcare experiences of Indigenous childbearing people.Reproductive health · 2025Article
- 'I Was Shattered and Broken': Unmasking the Experiences and Responses of Black Canadian to Pregnancy Loss.The Canadian journal of nursing research = Revue canadienne de recherche en sciences infirmieres · 2025Article
- Views of knowledge users on recurrent miscarriage services and supports in the Republic of Ireland: a qualitative interview study.BMJ open · 2025Article
- Midwives' support for parents following stillbirth: How they practise and resources they need from a phenomenological perspective.Journal of advanced nursing · 2025Article
- Review
- Exploring coping strategies for perinatal bereaved mothers with loss and its associated factors in public health facilities in Southwest Ethiopia.SAGE open medicine · 2025Article
- Diagnosis and management of early pregnancy loss.CMAJ : Canadian Medical Association journal = journal de l'Association medicale canadienne · 2024Review
- Short Term Coping-Behaviors and Postpartum Health in a Population-Based Study of Women with a Live Birth, Stillbirth, or Neonatal Death.Maternal and child health journal · 2024Article
- Bridging the gap between pregnancy loss research and policy and practice: insights from a qualitative survey with knowledge users.Health research policy and systems · 2024Article
- Assessing Interest in a Peer Support Person for Patients Experiencing Early Pregnancy Loss: Results from a National Survey.Women's health reports (New Rochelle, N.Y.) · 2024Article
- Lessons learned from developing and implementing digital health tools for self-managed abortion and sexual and reproductive healthcare in Canada, the United States, and Venezuela.Sexual and reproductive health matters · 2023Article
- Factors that shape recurrent miscarriage care experiences: findings from a national survey.BMC health services research · 2023Article
- Subsequent pregnancy after stillbirth: a qualitative narrative analysis of Canadian families' experiences.BMC pregnancy and childbirth · 2023Article
- Better maternity care pathways in pregnancies after stillbirth or neonatal death: a feasibility study.BMC pregnancy and childbirth · 2022Article
- Article
- Effects of E-Government Policy on the Management of Healthcare Systems.Applied bionics and biomechanics · 2022Article
Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPregnancy and infant loss has a pervasive impact on families, health systems, and communities. During and after loss, compassionate, individualized, and skilled support from professionals and organizations is important, but often lacking. Historically, little has been known about how families in Ontario access existing care and supports around the time of their loss and their experiences of receiving such care.
methodsAn online cross-sectional survey, including both closed-ended multiple choice questions and one open-ended question, was completed by 596 people in Ontario, Canada relating to their experiences of care and support following pregnancy loss and infant death. Quantitative data were analyzed descriptively using frequency distributions. Responses to the one open-ended question were thematically analyzed using a qualitative inductive approach.
resultsThe majority of families told us that around the time of their loss, they felt they were not adequately informed, supported and cared for by healthcare professionals, and that their healthcare provider lacked the skills needed to care for them. Almost half of respondents reported experiencing stigma from providers, exacerbating their experience of loss. Positive encounters with care providers were marked by timely, individualized, and compassionate care. Families indicated that improvements in care could be made by providing information and explanations, discharge and follow-up instructions, and through discussions about available supports.
conclusionsHealthcare professionals can make a positive difference in how loss is experienced and in overall well-being by recognizing the impact of the loss, minimizing uncertainty and isolation, and by thoughtfully working within physical environments often not designed for the experience of loss. Ongoing supports are needed and should be tailored to parents' changing needs. Prioritizing access to specialized education for professionals providing services and care to this population may help to reduce the stigma experienced by bereaved families.
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