Evidence map›Paper›PMID 30985288›Full record

ArticleJournal of medical Internet research2019

Understanding User Experience: Exploring Participants' Messages With a Web-Based Behavioral Health Intervention for Adolescents With Chronic Pain.

Annie T Chen, Aarti Swaminathan, William R Kearns, Nicole M Alberts, Emily F Law, Tonya M Palermo

Abstract read
In one paragraph

Article in Journal of medical Internet research, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed.

  1. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Annie T ChenDepartment of Biomedical Informatics and Medical Education, School of Medicine, University of Washington, Seattle, WA, United States.ORCID 0000-0003-3070-8336
Aarti SwaminathanDepartment of Biomedical Informatics and Medical Education, School of Medicine, University of Washington, Seattle, WA, United States.ORCID 0000-0002-0290-3073
William R KearnsDepartment of Biomedical Informatics and Medical Education, School of Medicine, University of Washington, Seattle, WA, United States.ORCID 0000-0002-2582-2794
Nicole M AlbertsDepartment of Psychology, St Jude Children's Research Hospital, Memphis, TN, United States.ORCID 0000-0002-7159-8156
Emily F LawDepartment of Anesthesiology and Pain Medicine, School of Medicine, University of Washington, Seattle, WA, United States.ORCID 0000-0002-8633-8891
Tonya M PalermoDepartment of Anesthesiology and Pain Medicine, School of Medicine, University of Washington, Seattle, WA, United States.ORCID 0000-0001-6036-6715

Funding

University of Washington Biomedical Informatics and Data Science Research Training ProgramT15LM007442 · NLM · UNIVERSITY OF WASHINGTON · PI JOHN H. GENNARI, Andrea L. Hartzler · 2002 to 2026
$19.6M
An internet CBT intervention for pediatric chronic pain and disabilityR01HD062538 · NICHD · SEATTLE CHILDREN'S HOSPITAL · PI PALERMO, TONYA M · 2010 to 2014
$2.1M
Psychosocial and Family Risk in Pediatric Chronic MigraineK23NS089966 · NINDS · SEATTLE CHILDREN'S HOSPITAL · PI LAW, EMILY F · 2015 to 2019
$741k
NICHD NIH HHS R01 HD062538NINDS NIH HHS K23 NS089966NLM NIH HHS T15 LM007442
6 · The paper itself

Abstract

backgroundDelivery of behavioral health interventions on the internet offers many benefits, including accessibility, cost-effectiveness, convenience, and anonymity. In recent years, an increased number of internet interventions have been developed, targeting a range of conditions and behaviors, including depression, pain, anxiety, sleep disturbance, and eating disorders. Human support (coaching) is a common component of internet interventions that is intended to boost engagement; however, little is known about how participants interact with coaches and how this may relate to their experience with the intervention. By examining the data that participants produce during an intervention, we can characterize their interaction patterns and refine treatments to address different needs.

objectiveIn this study, we employed text mining and visual analytics techniques to analyze messages exchanged between coaches and participants in an internet-delivered pain management intervention for adolescents with chronic pain and their parents.

methodsWe explored the main themes in coaches' and participants' messages using an automated textual analysis method, topic modeling. We then clustered participants' messages to identify subgroups of participants with similar engagement patterns.

resultsFirst, we performed topic modeling on coaches' messages. The themes in coaches' messages fell into 3 categories: Treatment Content, Administrative and Technical, and Rapport Building. Next, we employed topic modeling to identify topics from participants' message histories. Similar to the coaches' topics, these were subsumed under 3 high-level categories: Health Management and Treatment Content, Questions and Concerns, and Activities and Interests. Finally, the cluster analysis identified 4 clusters, each with a distinguishing characteristic: Assignment-Focused, Short Message Histories, Pain-Focused, and Activity-Focused. The name of each cluster exemplifies the main engagement patterns of that cluster.

conclusionsIn this secondary data analysis, we demonstrated how automated text analysis techniques could be used to identify messages of interest, such as questions and concerns from users. In addition, we demonstrated how cluster analysis could be used to identify subgroups of individuals who share communication and engagement patterns, and in turn facilitate personalization of interventions for different subgroups of patients. This work makes 2 key methodological contributions. First, this study is innovative in its use of topic modeling to provide a rich characterization of the textual content produced by coaches and participants in an internet-delivered behavioral health intervention. Second, to our knowledge, this is the first example of the use of a visual analysis method to cluster participants and identify similar patterns of behavior based on intervention message content.

Indexed as

AdolescentBehavior TherapyChronic PainFemaleHumansInternetMalechronic paincluster analysisdata visualizationnatural language processingtechnology

Identifiers

PMID30985288
PMCPMC6487347

What OpenQuestion holds

Textmetadata
LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.