Evidence map›Paper›PMID 30981423›Full record

ArticleHeart & lung : the journal of critical care

Family caregiver-reported outcomes regarding decision-making for left ventricular assist device implantation.

Barbara Birriel, Windy Alonso, Lisa A Kitko, Judith E Hupcey

Registry-linked trialAbstract read
In one paragraph

Article in Heart & lung : the journal of critical care. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06823583 (Multi-Site Feasibility Testing of the Ventricular Assist Device Anticipatory Guidance Tool), which is not on this map. Cited by 4 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT06823583 recruitingnot on this map

Multi-Site Feasibility Testing of the Ventricular Assist Device Anticipatory Guidance Tool

TypeobservationalSponsorBryan HeartRan2025 to 2026Enrolled10ConditionsVentricular Assist Device, Advanced Heart Failure, Anticipatory Guidance
3 · Its place in the literature

Who cites it

4 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
  3. Article
  4. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Barbara BirrielThe Pennsylvania State University, College of Nursing, 90 Hope Drive, 1300 Academic Support Building / A110, Hershey, PA 17033, United States. Electronic address: bbirriel@psu.edu.
Windy AlonsoThe Pennsylvania State University, College of Nursing, 90 Hope Drive, 1300 Academic Support Building / A110, Hershey, PA 17033, United States; University of Nebraska Medical Center, College of Nursing, 985330 Nebraska Medical Center, Omaha, NE 68198-5330, United States.
Lisa A KitkoThe Pennsylvania State University, College of Nursing, 90 Hope Drive, 1300 Academic Support Building / A110, Hershey, PA 17033, United States; The Pennsylvania State University, College of Nursing, 307H Nursing Sciences Building, University Park, PA 16802, United States.
Judith E HupceyThe Pennsylvania State University, College of Nursing, 90 Hope Drive, 1300 Academic Support Building / A110, Hershey, PA 17033, United States.

Funding

Palliative care algorithms for HF dyads: 1-year versus 2-year predicted survivalR01NR013419 · NINR · PENNSYLVANIA STATE UNIVERSITY, THE · PI HUPCEY, JUDITH E · 2011 to 2014
$1.6M
NINR NIH HHS R01 NR013419
6 · The paper itself

Abstract

backgroundFamily caregivers (FCGs) often participate in the decision for their loved one to receive a left ventricular assist device (LVAD). Little is known about the contribution of FCGs to this complex decision.

objectivesTo investigate family caregiver-reported outcomes related to decision-making for LVAD implantation and their experiences post-implantation.

methodsDescriptive thematic analysis was used to analyze longitudinal data. Thematic saturation was achieved.

resultsThree key themes emerged from the data. The main theme in the pre-implantation period was: Not a decision. The two themes in the post-implantation period were: More satisfaction than regret and Unanticipated situational change.

conclusionsFamily caregiver-reported outcomes inform clinical practice and future research. FCGs of LVAD recipients did not see viable alternatives to LVAD implantation, were generally satisfied with post-implantation outcomes, and experienced unexpected life changes in the post-implantation period despite feeling prepared preoperatively. Education of both LVAD recipients and their FCGs must be optimized.

Indexed as

Decision MakingHeart-Assist DevicesAdaptation, PsychologicalAdultAgedCaregiversFemaleFollow-Up StudiesHeart FailureHumansMaleMiddle AgedPatient Reported Outcome MeasuresTreatment RefusalYoung AdultDecision makingFamily caregiversHeart failureVentricle assist device (ventricular assist device)

Identifiers

PMID30981423
PMCPMC6589365

What OpenQuestion holds

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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.