Evidence map›Paper›PMID 30980507›Full record

SynthesisArthritis care & research2020

Systematic Review and Appraisal of the Cross-Cultural Validity of Functional Status Assessment Measures in Rheumatoid Arthritis.

Stephanie C Kulhawy-Wibe, JoAnn Zell, Kaleb Michaud, Jinoos Yazdany, Aileen M Davis, Linda Ehrlich-Jones, J Carter Thorne, Donna Everix, Laura C Cappelli, Lisa G Suter and 2 more

Open access · hybridAbstract readSystematic Review
In one paragraph

Synthesis in Arthritis care & research, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed, 1 pooled it
1.1field-weighted citation impact, top 23% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed, 1 synthesis or guideline pooled it, 9 citations in OpenAlex.

  1. Pooled it
  2. Article
  3. Predictors of functional capacity as measured by the Glittre activities of daily living test in women with rheumatoid arthritis.Brazilian journal of medical and biological research = Revista brasileira de pesquisas medicas e biologica · 2021
    Article
  4. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors at 10 institutions in 2 countries.

Stephanie C Kulhawy-WibeCumming School of Medicine, University of Calgary, Calgary, Alberta, Canada.
JoAnn ZellDenver Health and University of Colorado, Denver.
Kaleb MichaudUniversity of Nebraska Medical Center, Omaha, and Forward, The National Databank for Rheumatic Diseases, Wichita, Kansas.ORCID 0000-0002-5350-3934
Jinoos YazdanyUniversity of California San Francisco.
Aileen M DavisKrembil Research Institute, University Health Network, and Dalla Lana School of Public Health, University of Toronto, Toronto, Ontario, Canada.
Linda Ehrlich-JonesShirley Ryan AbilityLab, Chicago, Illinois.
J Carter ThorneUniversity of Toronto, Toronto, Ontario, Canada.
Donna EverixOn My Care Home Health, Fremont, California.
Laura C CappelliJohn Hopkins University, Baltimore, Maryland.
Lisa G SuterYale University, New Haven, Connecticut.
Alex LimanniArthritis Centers of Texas, Dallas.
Claire E H BarberCumming School of Medicine, University of Calgary, and Arthritis Research Canada, Calgary, Alberta, Canada.ORCID 0000-0002-3062-5488
University of Calgary · CAHome Free Home · USJohns Hopkins University · USShirley Ryan AbilityLab · USThe National Databank for Rheumatic Diseases · USUniversity Health Network · CAUniversity of California, San Francisco · USUniversity of Denver · USUniversity of Toronto · CAYale University · US

Funding

RESOURCE-BASED CENTER FOR THE ADVANCEMENT OF PRECISION MEDICINE IN RHEUMATOLOGYP30AR070155 · NIAMS · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI Mary C Nakamura · 2016 to 2026
$8.2M
Rheumatology Informatics System for Effectiveness Patient-Reported Outcome (RISE-PRO) Dissemination ProjectR18HS025638 · AHRQ · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI YAZDANY, JINOOS · 2018 to 2020
$1.5M
AHRQ HHS R18 HS025638NIAMS NIH HHS P30 AR070155
6 · The paper itself

Abstract

objectiveWe conducted a systematic review and appraisal of the cross-cultural adaptation and cross-cultural validity of the Health Assessment Questionnaire (HAQ) and its derivatives, and of the more recent Patient-Reported Outcomes Measurement Information System (PROMIS) functional status assessment measures (FSAMs) in rheumatoid arthritis.

methodsFour electronic medical databases were searched from inception until April 4, 2018 according to the Consensus-Based Standards for the Selection of Health Measurement Instruments (COSMIN) group search strategy. Included studies were evaluated using the COSMIN tool for cross-cultural validity and were scored as excellent, good, fair, or poor.

resultsOf 58 articles identified by our search strategy and 3 by manual search, 39 were included: 29 described the translation, cultural adaptation, or cross-cultural validity of the HAQ disability index, 8 other HAQ derivatives, and 2 PROMIS measures, representing 22 languages. Of the 39 articles reviewed, 3 examined the cross-cultural validity of translated versions. These studies were rated as follows: 2 as excellent, 3 good, 13 fair, and 21 poor. Two studies examining cross-cultural validity noted differential item functioning (DIF) between Dutch and US populations for the HAQ-II and PROMIS measures, and a third study found DIF between Turkish and UK populations on the HAQ, indicating cultural differences in questionnaire response.

conclusionThis review highlights a paucity of data on the cross-cultural validity of FSAMs and the mostly poor- or fair-quality methods by which they were translated and adapted, which needs to be considered when using these measures for multinational clinical trials and for day-to-day use in clinical practice.

Indexed as

Arthritis, RheumatoidCulturally Competent CareHealth Status IndicatorsDisability EvaluationHumansReproducibility of Results

Identifiers

PMID30980507
PMCPMC7317906
OpenAlexW2938545637

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.