ArticleNPJ primary care respiratory medicine2019
What matters to people with COPD: outputs from Working Together for Change.
Article in NPJ primary care respiratory medicine, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.
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Who cites it
8 citing papers in PubMed.
- A tailored psychological intervention for anxiety and depression management in people with chronic obstructive pulmonary disease: TANDEM RCT and process evaluation.Health technology assessment (Winchester, England) · 2024Trial
- Loss of appetite in patients with chronic obstructive pulmonary disease - a mixed methods study.European clinical respiratory journal · 2025Article
- A systems approach to developing user requirements for increased pulmonary rehabilitation uptake by COPD patients.NPJ primary care respiratory medicine · 2024Article
- Article
- Relationship between serum Th1/Th2 imbalance and depression in elderly patients with COPD and its clinical implications.Technology and health care : official journal of the European Society for Engineering and Medicine · 2023Article
- Shared decision-making in general practice from a patient perspective. A cross-sectional survey.Scandinavian journal of primary health care · 2022Article
- Self-management in chronic lung disease: what is missing?Breathe (Sheffield, England) · 2022Review
- Features and characteristics of publicly available mHealth apps for self-management in chronic obstructive pulmonary disease.Digital healthArticle
Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Chronic obstructive pulmonary disease (COPD) has a negative impact on people's quality of life affecting daily activities and mental and emotional well-being. Healthcare services need to understand what patients want and need. We used a co-production methodology, Working Together for Change, not previously used in a COPD setting to determine what matters to people with COPD. Forty patients took part in one-to-one discussions to identify what was working well, not working well and what was important for the future in terms of their COPD care. The responses were analysed in two one-day co-production workshops involving COPD patients, carers and professionals. The six highest priority themes around what's not working well were: 'I don't think the right hand knows what the left hand is doing', 'I can't get appointments when I want them', 'I'm not treated as a person', 'I can't do what I want to do', 'I'm anxious and depressed' and 'I can't eat well.' Professionals gained powerful insights into the difficulties of COPD through their interactions with patients in the workshops. What mattered to patients encompassed meaning, purpose and relationships beyond immediate medical needs and underlines the need for patient-centred holistic approaches to COPD care and support.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.