ArticleBMC palliative care2019
Towards appropriate information provision for and decision-making with patients with limited health literacy in hospital-based palliative care in Western countries: a scoping review into available communication strategies and tools for healthcare providers.
Article in BMC palliative care, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 30 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
30 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Social determinants of multimorbidity patterns: A systematic review.Frontiers in public health · 2023Pooled it
- Feasibility and effectiveness of tools that support communication and decision making in life-prolonging treatments for patients in hospital: a systematic review.BMJ supportive & palliative care · 2022Pooled it
- "Having surgery is necessary" - a qualitative analysis of the experiences of frail older adults treated with, and recovering from colorectal cancer surgery.BMC geriatrics · 2026Trial
- Incremental levels of diagnostic information incentivize health-seeking in non-alcoholic fatty liver: a randomized clinical trial.Scientific reports · 2022Trial
- A theory of planned behavior-enhanced intervention to promote health literacy and self-care behaviors of type 2 diabetic patients.Journal of preventive medicine and hygiene · 2020Trial
- Exploring the Relationship Between Palliative Care Knowledge, Health Concerns, and Education Among Seriously Ill Older Adults and Their Family Caregivers Using Survey and Interview Data: A Novel Approach.The American journal of hospice & palliative care · 2026Article
- Consumer Co-Design of an Online Resource to Build Communication Skills of Health Consumers: Mixed Methods Study.JMIR formative research · 2025Article
- Identifying Dimensions of Organizational Health Literacy in Hospitals: A Scoping Review.Iranian journal of public health · 2025Review
- The effect of clinician-expressed empathy and nocebo-alleviating information on breast-cancer-patients' anxiety and side effects during active chemotherapy: A clinical feasibility study.PEC innovation · 2025Article
- Unveiling the burden of COPD: perspectives on a patient-reported outcome measure to support communication in outpatient consultations-an interview study among patients.Frontiers in rehabilitation sciences · 2024Article
- Visual decision aids to support communication and shared decision-making: How are they valued and used in practice?PloS one · 2024Article
- Health literate-sensitive shared decision-making in maternity care: needs for support among maternity care professionals in the Netherlands.BMC pregnancy and childbirth · 2023Article
- A qualitative exploration of allied health providers' perspectives on cultural humility in palliative and end-of-life care.BMC palliative care · 2023Article
- 'A basic understanding'; evaluation of a blended training programme for healthcare providers in hospital-based palliative care to improve communication with patients with limited health literacy.BMC medical education · 2022Article
- Observational
- Counselling for prenatal anomaly screening to migrant women in the Netherlands: An interview study of primary care midwives' perceived barriers with client-midwife communication.European journal of midwifery · 2022Article
- Addressing challenges in information-provision: a qualitative study among oncologists and women with advanced breast cancer.BMC palliative care · 2021Article
- Article
- Socio-Economic Deprivation and Symptom Burden in UK Hospice Patients with Advanced Cancer-Findings from a Longitudinal Study.Cancers · 2021Article
- [Overtreatment in intensive care medicine-recognition, designation, and avoidance : Position paper of the Ethics Section of the DIVI and the Ethics section of the DGIIN].Medizinische Klinik, Intensivmedizin und Notfallmedizin · 2021Review
Corrections and comments
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Authors and funding
6 authors.
Funding
Abstract
backgroundPerson-centred palliative care poses high demands on professionals and patients regarding appropriate and effective communication and informed decision-making. This is even more so for patients with limited health literacy, as they lack the necessary skills to find, understand and apply information about their health and healthcare. Recognizing patients with limited health literacy and adapting the communication, information provision and decision-making process to their skills and needs is essential to achieve desired person-centred palliative care. The aim of this study is to summarize available strategies and tools for healthcare providers towards successful communication, information provision and/or shared decision-making in supporting patients with limited health literacy in hospital-based palliative care in Western countries.
methodsA scoping review was conducted. First, databases PubMed, Embase, CINAHL, and PsycINFO were searched. Next, grey literature was examined using several online databases and by contacting national experts. In addition, all references of included studies were checked.
resultsFive studies were included that showed that there are face-to-face, written as well as online strategies available for healthcare providers to support communication, information provision and, to a lesser extent, (shared) decision-making in palliative care for patients with limited health literacy. Strategies that were mentioned several times were: teach-back method, jargon-free communication and developing and testing materials with patients with limited health literacy, among others. Two supporting tools were found: patient decision aids and question prompt lists.
conclusionsTo guarantee high quality person-centred palliative care, the role of health literacy should be considered. Although there are several strategies available for healthcare providers to facilitate such communication, only few tools are offered. Moreover, the strategies and tools appear not specific for the setting of palliative care, but seem helpful for providers to support the communication, information provision and decision making with patients with limited health literacy in general. Future research should focus on which strategies or tools are (most) effective in supporting patients with limited health literacy in palliative care, and the implementation of these strategies and tools in practice.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.