Trial reportBMC health services research2019
Caregivers' experiences of a home support program after the hospital discharge of an older family member: a qualitative analysis.
Trial report in BMC health services research, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
17 citing papers in PubMed, 48 citations in OpenAlex.
- Nursing-Sensitive Process Indicators Predicting 30-Day Readmission in Chronic Heart Failure.Journal of clinical nursing · 2026Article
- Mapping Existing Informal Home Caregiver Support Guidelines for Palliative Care: A Scoping Review.Rwanda journal of medicine and health sciences · 2026Review
- Exploring Satisfaction and Support Needs of Informal Home Caregivers Using Palliative Care Services: A Mixed-Methods Study from Rwanda.Rwanda journal of medicine and health sciences · 2026Article
- Palliative care conditions managed at home and self-reported challenges experienced by informal home-based caregivers in Rwanda: a qualitative study.BMC palliative care · 2025Article
- Transition from Hospital to Home-Based Care for Older Adults in Southwestern Uganda: Informal Caregiver's Experiences.Journal of multidisciplinary healthcare · 2025Article
- A scoping review to examine health care professionals' experiences as family caregivers.PloS one · 2025Article
- Unpaid caregivers' process of collaborating with others during older adult hospital-to-home transitions: A grounded theory study.PloS one · 2024Article
- Caregiving in the COVID-19 pandemic: Family adaptations following an intensive care unit hospitalisation.Journal of clinical nursing · 2024Article
- Hospital to Home: Supporting the Transition From Hospital to Home for Older Adults.The Canadian journal of nursing research = Revue canadienne de recherche en sciences infirmieres · 2022Article
- Understanding the experiences of older caregivers of patients with lung cancer during palliative chemotherapy in China: a qualitative study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Article
- Negative and positive experiences of caregiving among family caregivers of older blunt trauma patients.PloS one · 2022Article
- Family caregivers' perspectives on the acceptability of four interventions proposed for rural transitional care: A multi-method study.PloS one · 2022Article
- Letting the patients speak: an in-depth, qualitative research-based investigation of factors relevant to health-related quality of life in real-world patients with hereditary angioedema using subcutaneous C1 inhibitor replacement therapy.Allergy, asthma, and clinical immunology : official journal of the Canadian Society of Allergy and Clinical Immunology · 2021Article
- Grieves and struggles of family caregivers providing care for bedridden elderly patients affected by chronic degenerative diseases.Investigacion y educacion en enfermeria · 2021Article
- Exploring the dimensions of patient experience for community-based care programmes in a multi-ethnic Asian context.PloS one · 2020Article
- Article
- Predictors of Decision Regret among Caregivers of Older Canadians Receiving Home Care: A Cross-Sectional Online Survey.MDM policy & practiceArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors at 4 institutions in 1 country.
Funding
Abstract
backgroundThe ageing global population has seen increasing numbers of older people living with chronic health problems, declining function, and frailty. As older people seek to live out their years at home, family members, friends and neighbours (informal caregivers) are increasingly relied upon for support. Moreover, pressured health systems and shorter hospital length of stay mean that informal caregivers can find themselves supporting the older person who is still unwell after discharge. The Further Enabling Care at Home (FECH) program was developed as a nursing outreach intervention designed to systematically address support needs of family caregivers of older people after hospital discharge to sustain their home-based caregiving. The objective of this study was to explore the experiences of informal caregivers who participated in the FECH program after an older family member's discharge from hospital.
methodsThe study employed a qualitative descriptive design. Caregivers of older people discharged home from a Medical Assessment Unit in an Australian hospital who were included in the program were interviewed to explore their experiences and perceptions of the FECH program. Data were audio-recorded, transcribed, and subjected to thematic analysis.
resultsTwenty-one family caregivers (81% female, aged 25-89 years) participated in the interviews. Themes emerging were 'The experience of caregiving'; 'The experience of receiving FECH program support'; and 'Caregivers' suggestions for improvement'. Caregivers indicated that reflective discussions with the FECH nurse enabled them to recognise the complexity of the caregiving role and determine aspects where they needed support. Caregivers valued guidance from the FECH nurse in accessing information and resources, which helped them to feel more connected to support, more prepared to care for the older person and themselves, and more secure in the caregiving role.
conclusionsCaregivers' experiences indicated that the structured reflective FECH discussions prompted thought and provided guidance in navigating health and care systems. The FECH program appears to offer a means to address the practical, physical and psychosocial needs of informal caregivers as partners in person-centred health and social care.
trial registrationANZCTR Trial ID: ACTRN126140011746773 .
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.