Evidence map›Paper›PMID 30962705›Full record

ArticlePharmacogenomics and personalized medicine2019

Population's perspectives toward biobanks in scientific research: a study from Jordan.

Hanin Makhlouf, Nasr Alrabadi, Omar F Khabour, Karem H Alzoubi, Wael Al-Delaimy

Abstract read
In one paragraph

Article in Pharmacogenomics and personalized medicine, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers.

0numbers the graph read from it
0cells of the map it votes in
16citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

16 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
  4. Article
  5. Article
  6. Article
  7. Article
  8. Article
  9. Article
  10. Article
  11. Article
  12. Article
  13. Article
  14. Informed Consent Form Challenges for Genetic Research in Jordan.Journal of multidisciplinary healthcare · 2020
    Article
  15. Jordanians' Perspectives On Open Consent In Biomedical Research.Risk management and healthcare policy · 2019
    Article
  16. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Hanin MakhloufDepartment of Medical Laboratory Sciences, Jordan University of Science and Technology, Irbid, Jordan.
Nasr AlrabadiDepartment of Pharmacology, Faculty of Medicine, Jordan University of Science and Technology, Irbid, Jordan, nnalrabadi@just.edu.jo.
Omar F KhabourDepartment of Medical Laboratory Sciences, Jordan University of Science and Technology, Irbid, Jordan.
Karem H AlzoubiDepartment of Clinical Pharmacy, Jordan University of Science and Technology, Irbid, Jordan.
Wael Al-DelaimyDivision of Global Health, Department of Family and Preventive Medicine, University of California at San Diego, San Diego, CA, USA.

Funding

The Research Ethics Education Program in JordanR25TW010026 · FIC · UNIVERSITY OF CALIFORNIA, SAN DIEGO · PI AL-DELAIMY, WAEL K · 2015 to 2025
$2.5M
FIC NIH HHS R25 TW010026
6 · The paper itself

Abstract

backgroundBiobanks (biorepositories) were established to compile collected bio-specimens for future research and usage. The collection/storage of bio-specimens triggers several social, legal, and ethical implications where public attitudes can represent the core measurement/parameter in defining the most acceptable practices and ethical approaches when dealing with biobanks.

aimThe aim of this study was to explore and understand population's perspectives, expectations, and concerns toward biobanks in Jordan.

methodsA cross-sectional survey that included closed-ended questions was distributed among Jordanians. A total of 500 participants who are representative of the Jordanian population were included in this study.

resultsThere was overwhelming support (>85%) for the establishment of biobanks in Jordan, and most of the participants agreed on the importance of biobanks and samples' donation for promoting medical research. Enthusiasm in biobanking participation was associated with the sociodemographic characteristics of participants including age, educational level, and previous knowledge of biobanks. Moreover, considering sample donation as a religiously good deed appeared to have the strongest positive correlation with willingness to donate bio-specimens for future research. Also, participants' trust in medical and research services, especially the protection of their privacy and confidentiality, was the most critical concern when they decided to participate in biobanks.

conclusionPopulation's attitude toward biobanks in Jordan was positive and promising, and can encourage the future establishment of different biobanks. It is also necessary to take into consideration certain sociodemographic characteristics when discussing specific information with potential biobanks' donors.

Indexed as

biorepositoriesethicssample donationsample reusesample storage

Identifiers

PMID30962705
PMCPMC6432886

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.