ArticleBMC pediatrics2019
Assessing the role of family well-being on the quality of life of Indian children with thalassemia.
Article in BMC pediatrics, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.
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Who cites it
10 citing papers in PubMed, 27 citations in OpenAlex.
- The epidemiology of thalassaemia syndromes in Southeast Asia.The Lancet regional health. Southeast Asia · 2026Review
- Generic health-related quality of life instruments among children and adolescents in low- and middle-income countries: a scoping review.Systematic reviews · 2026Article
- Assessment of Adherence to Iron Chelation Therapy Among Thalassemia Patients in Palestine.Anemia · 2025Article
- Quality of life and thalassemia in India: A scoping review.Journal of family medicine and primary care · 2024Article
- Health-related quality of life with standard and curative therapies in thalassemia: A narrative literature review.Annals of the New York Academy of Sciences · 2024Review
- Life satisfaction and difficulties experienced by the family members of individuals with thalassemia.Nursing open · 2023Article
- Nursing Interventions to Improve Quality of Life Among Children and Adolescents with Thalassemia: A Scoping Review.Journal of multidisciplinary healthcare · 2023Article
- Family Wellbeing and Sexual Health of Patients Receiving Treatment for Prostate Cancer [Letter].Cancer management and research · 2023Article
- Influencing subjective well-being for business and sustainable development using big data and predictive regression analysis.Journal of business research · 2021Article
- Socio-religious Prognosticators of Psychosocial Burden of Beta Thalassemia Major.Journal of religion and health · 2020Article
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Authors and funding
3 authors at 1 institution in 1 country.
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No grant is acknowledged in the PubMed record.
Abstract
backgroundThe association between chronic diseases and psychological problems is well established. As thalassemia is chronic blood disorder with burdensome treatment procedures, patients are likely to have psychological health problems. Many studies reported evidences regarding the quality of life. But, factors influencing the health-related quality of life with focus on psychological well-being were minimally studied. We aimed to find the factors contributing to the health-related quality of life among thalassemia affected children and hypothesising whether the parent's psychological well-being, sociodemographic characteristics and transfusion interval have an impact on children's quality of life.
methodA cross-sectional analytical study conducted on 125 thalassemia patients and 125 parents (either father or mother) referred to the clinic of Thalassemia treatment center. KIDSCREEN-10 and Ryff Psychological well-being scale is used for measuring the health-related quality of life and well-being of children and parent respectively.
resultsWe have found the three factors such as family income, children education, and, parent education significantly contributed to the children's health-related quality of life among thalassemia affected children. The average score of Health-related quality of life among children is 16.28 with a standard deviation of 3.432 and the mean psychological well-being score for the parent is 83.99 with a standard deviation of 11.41. A positive correlation exists between parent psychological well-being and children's health-related quality of life.
conclusionFamily well-being is the foundation for quality of life of the children. It was found that factors such as family income and parents' and children's education have a direct association with HRQoL of life of children with thalassemia. However, more studies need to be done in order to ascertain the factors contributing to HRQoL of children with thalassemia to improve the quality of life of thalassemia patients.
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