ArticleBioethics2019
Patient and public involvement: Two sides of the same coin or different coins altogether?
Article in Bioethics, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 31 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
31 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Systematic Review: Patient and Public Involvement of Children and Young People in Mental Health Research.Clinical child and family psychology review · 2024Pooled it
- Patient and public involvement in a randomized study: a qualitative study of participants' experiences in a Mediterranean Diet trial.Journal of public health (Oxford, England) · 2025Trial
- Conceptualising and operationalising 'patient and public involvement' (PPI) and 'responsible research and innovation' (RRI) in youth mental health research: a scoping review.Research involvement and engagement · 2026Review
- Perspectives of paediatricians on collecting children's and caregivers' preferences for outcomes relevant to patients: a qualitative interview study in China.BMJ paediatrics open · 2026Article
- Determining a role for Patient and Public Involvement and Engagement (PPIE) in genomic data governance for cancer care.European journal of human genetics : EJHG · 2026Article
- Bioethics committee approvals in multicentre laryngology research across Europe: the European Laryngological Society's consensus on legal basis and quality assurance.European archives of oto-rhino-laryngology : official journal of the European Federation of Oto-Rhino-Laryngological Societies (EUFOS) : affiliated with the German Society for Oto-Rhino-Laryngology - Head and Neck Surgery · 2026Article
- Patient and Public Involvement and Engagement within a UK blood cancer cohort: a case study.Research involvement and engagement · 2026Article
- A Co-production Evaluation Tool Informed by Co-production Workshops for Use in Evidence Synthesis Contexts.Cochrane evidence synthesis and methods · 2026Article
- Amplifying the Voices of Youth for Equity in Wellness and Technology Research: Reflections on the Midwest Youth Wellness Initiative on Technology (MYWIT) Youth Advisory Board.JMIR public health and surveillance · 2025Article
- Youth patient and public involvement in health research in the Netherlands: experiences from a multi-stakeholder interview study.Research involvement and engagement · 2025Article
- Civil Society's Evidence-Generating Role for Health Policy Decisions: A Thematic Analysis of a Healthcare Information for All (HIFA) Community Online Discussion.International journal of health policy and management · 2025Article
- What justifies public engagement in health financing decisions?Bulletin of the World Health Organization · 2025Article
- Trends in Government-Initiated Public Engagement in Canadian Health Policy From 2000 to 2021.Healthcare policy = Politiques de sante · 2024Article
- What Should Personalised Mental Health Support Involve? Views of Young People with Lived Experience and Professionals from Eight Countries.Administration and policy in mental health · 2024Article
- Application and evolution of design in oral health: A systematic mapping study with an interactive evidence map.Community dentistry and oral epidemiology · 2024Review
- £25 and a biscuit: Women's Health Research and Public Engagement in the UK.Research involvement and engagement · 2023Article
- Public involvement in the Swedish health system: citizen dialogues with unclear outcomes.BMC health services research · 2023Article
- Research involvement and engagement of adolescent and young adults in a cancer trajectory: a 5-year experience from a patient support facility at a university hospital.Research involvement and engagement · 2023Article
- Democratic Justifications for Patient Public Involvement and Engagement in Health Research: An Exploration of the Theoretical Debates and Practical Challenges.The Journal of medicine and philosophy · 2023Article
- Lessons learnt from delivering the public and patient involvement forums within a younger onset dementia project.Dementia (London, England) · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
Abstract
Patient and public involvement (PPI) has gained widespread support in health research and health policy circles, but there is little consensus on the precise meaning or justifications of PPI. We argue that an important step towards clarifying the meaning and justification for PPI is to split apart the familiar acronym and draw a distinction between patient and public involvement. Specifically, we argue that patient involvement should refer to the practice of involving individuals in health research or policy on the basis of their experience with a particular condition, while public involvement should refer to the practice of involving individuals in health policy or research based on their status as members of a relevant population. Analyzing cases from the UK, Australia, and the USA, we show how our proposed distinction can deliver much needed clarity to conversations on PPI, while guiding the development and evaluation of future PPI-based policies.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.