ArticlePalliative & supportive care2019
What do family caregivers know about palliative care? Results from a national survey.
Article in Palliative & supportive care, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
24 citing papers in PubMed, 48 citations in OpenAlex.
- Impact of a psychoeducational intervention to improve caregiver knowledge and attitudes toward palliative cancer care.Patient education and counseling · 2025Trial
- Trial
- Family Caregivers' Understanding, Expectations, and Emotional Responses During Transition to a Palliative Care Unit: A Qualitative Study.Nursing open · 2026Article
- Palliative Care Awareness Among Caregivers of Cancer Patients in Turkey: A Cross-Sectional Study.Current oncology (Toronto, Ont.) · 2026Article
- Awareness and misconceptions of palliative care among paid, unpaid, and non-caregivers in the U.S.BMC palliative care · 2026Article
- Design, adaptation and content validation of the Sheffield Profile for Assessment and Referral for Care in Colombian Spanish (SPARC-Sp-Col).BMC palliative care · 2026Article
- Article
- Advancing the understanding of palliative care in Singapore: knowledge, attitudes, receptiveness, and the moderating role of media information-seeking preferences.Frontiers in public health · 2026Article
- The Paradox of Choice in Palliative Care Decision-Making in Managed Long-Term Care: A Qualitative Study.Home health care management & practice · 2025Article
- The General Public and Young Adults' Knowledge and Perception of Palliative Care: A Systematic Review.Healthcare (Basel, Switzerland) · 2024Review
- Why is end-of-life inpatient cost high among cancer patients? A prospective cohort study.Cancer medicine · 2024Article
- Providing clarity: communicating the benefits of palliative care beyond end-of-life support.Palliative care and social practice · 2024Article
- Article
- Comparison of palliative care education for family caregivers in high-and-low-income countries: An integrative review.Belitung nursing journal · 2023Review
- Full Code to Do-Not-Resuscitate: Culturally Adapted Palliative Care Consultations and Code Status Change Among Seriously Ill Hispanic Patients.The American journal of hospice & palliative care · 2022Article
- Last Aid Course-The Slovenian Experience.Healthcare (Basel, Switzerland) · 2022Article
- Article
- Listening to Caregivers' Voices: The Informal Family Caregiver Burden of Caring for Chronically Ill Bedridden Elderly Patients.International journal of environmental research and public health · 2022Article
- Young adults understanding and readiness to engage with palliative care: extending the reach of palliative care through a public health approach: a qualitative study.BMC palliative care · 2021Article
- Predictors of Palliative Care Knowledge: Findings from the Health Information National Trends Survey.Cancer epidemiology, biomarkers & prevention : a publication of the American Association for Cancer Research, cosponsored by the American Society of Preventive Oncology · 2021Article
Corrections and comments
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Authors and funding
3 authors at 3 institutions in 1 country.
Funding
Abstract
objectiveDespite their key role in caring for individuals with serious, chronic illness, there have been no national studies examining family caregiver awareness and perceptions of palliative care. Hence, our objectives were to ascertain level of knowledge of palliative care among U.S. family caregivers and describe demographic variation in awareness and perceptions of palliative care.
methodUsing the 2018 National Cancer Institute Health Information National Trends Survey, we identified unpaid family caregivers caring or making healthcare decisions for someone with a medical, behavioral, disability, or other condition. Respondents were asked about their awareness of the term "palliative care" and, if aware, how much they agreed with statements representing common (mis)perceptions about palliative care (e.g., "Palliative care is the same as hospice").
resultMore than one-half of caregivers (55%) had "never heard" of palliative care; 19.2% knew what palliative care was and "could explain it to someone else." In adjusted models, racial minorities (vs. whites) and those without a college degree were less likely to have heard of palliative care. Among those aware of palliative care, ~40% "strongly" or "somewhat" agreed that "Palliative care is the same as hospice"; another 10.5% "didn't know." Similarly, 40% reported that "When I think of palliative care, I automatically think of death." SIGNIFICANCE OF
resultsOne-half of family caregivers of adults with serious chronic illness have never heard of palliative care. Even among those who had heard of palliative care, the majority do not distinguish it from hospice care and death. Given the role family caregivers may play in decisions to access palliative care, public messaging efforts are needed to clarify palliative care services in a way that is patient- and family-centered.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.