ArticleBMJ open respiratory research2019
First patient-centred set of outcomes for pulmonary sarcoidosis: a multicentre initiative.
Article in BMJ open respiratory research, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
16 citing papers in PubMed, 2 syntheses or guidelines pooled it, 27 citations in OpenAlex.
- Pooled it
- Systematic review of international Delphi surveys for core outcome set development: representation of international patients.BMJ open · 2020Pooled it
- Radiomic profiling of chest CT in a cohort of sarcoidosis cases.Scientific reports · 2026Article
- A decade of change towards Value-Based Health Care at a Dutch University Hospital: a complexity-informed process study.Health research policy and systems · 2024Article
- Outcomes in pulmonary sarcoidosis: results of a newly implemented prednisone protocol.Sarcoidosis, vasculitis, and diffuse lung diseases : official journal of WASOG · 2023Article
- Health Outcomes Management Evaluation-A National Analysis of Dutch Heart Care.European heart journal. Quality of care & clinical outcomes · 2022Article
- Clinical, imaging and functional determinants of sarcoidosis phenotypes in a Greek population.Journal of thoracic disease · 2022Article
- Sarcoidosis: Updates on therapeutic drug trials and novel treatment approaches.Frontiers in medicine · 2022Review
- Identifying a core outcome set for pulmonary sarcoidosis research - the Foundation for Sarcoidosis Research - Sarcoidosis Clinical OUtcomes Taskforce (SCOUT).Sarcoidosis, vasculitis, and diffuse lung diseases : official journal of WASOG · 2022Article
- A Comprehensive Review of Sarcoidosis Diagnosis and Monitoring for the Pulmonologist.Pulmonary therapy · 2021Review
- Physician Mistrust and Discrimination in Sarcoidosis: It's Real and It's Prevalent.Annals of the American Thoracic Society · 2021Article
- Scout - sarcoidosis outcomes taskforce. A systematic review of outcomes to inform the development of a core outcome set for pulmonary sarcoidosis.Sarcoidosis, vasculitis, and diffuse lung diseases : official journal of WASOG · 2021Article
- Clinical characteristics and organ system involvement in sarcoidosis: comparison of the University of Minnesota Cohort with other cohorts.BMC pulmonary medicine · 2020Article
- Treatment of Sarcoidosis: A Multidisciplinary Approach.Frontiers in immunology · 2020Review
- Results of the standard set for pulmonary sarcoidosis: feasibility and multicentre outcomes.ERJ open research · 2019Article
- Contemporary optimized practice in the management of pulmonary sarcoidosis.Therapeutic advances in respiratory diseaseReview
Corrections and comments
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Authors and funding
12 authors at 9 institutions in 4 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Introduction: Routine and international comparison of clinical outcomes enabling identification of best practices for patients with pulmonary sarcoidosis is lacking. The aim of this study was to develop a standard set of outcome measures for pulmonary sarcoidosis, using the value-based healthcare principles. Methods: Six expert clinics for interstitial lung diseases in four countries participated in a consensus-driven RAND-modified Delphi study. A mixed-method approach was applied for the identification of an outcome measures set and initial conditions for patients with pulmonary sarcoidosis. The expert team consisted of multidisciplinary professionals (n=14) from Cleveland Clinic, Cincinnati MC, Erasmus MC, Leuven UZ, Royal Brompton and St. Antonius Hospital. During a ranking process, participants were instructed to rank variables on a scale from 1 to 10 based on whether it has (1) impact of the outcome on quality of life, (2) impact of quality of care on the outcome and (3) the number of patients negatively affected by the outcome. Results: An outcome measures set was defined consisting of seven outcome measures: mortality, pulmonary function, soluble interleukin-2 receptor change as an activity biomarker, weight gain, quality of life, osteoporosis and clinical outcome status. Discussion: Collecting outcomes in pulmonary sarcoidosis internationally and the use of a broadly accepted set can enable international comparison. Differences in outcomes can potentially be used as a starting point for quality improvement initiatives.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.