Evidence map›Paper›PMID 30956800›Full record

ArticleBMJ open respiratory research2019

Relating Experienced To Recalled breathlessness Observational (RETRO) study: a prospective study using a mobile phone application.

Jacob Sandberg, Robert Lansing, Peter Anderberg, David Currow, Josefin Sundh, Zainab Ahmadi, Sebastian Palmqvist, Magnus Ekström

Registry-linked trialAbstract readClinical Trial Protocol
In one paragraph

Article in BMJ open respiratory research, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT03468205 (The Relating Experienced To Recalled Breathlessness Observational Study), which is not on this map. Cited by 7 papers.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT03468205 completednot on this map

The Relating Experienced To Recalled Breathlessness Observational Study

Typeobservational_patient_registrySponsorSkane University HospitalRan2018 to 2021Enrolled90ConditionsBreathlessness, Dyspnea
3 · Its place in the literature

Who cites it

7 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
  4. Article
  5. Article
  6. Article
  7. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Jacob SandbergDepartment of Clinical Sciences, Division of Respiratory Medicine and Allergology, Lund University, Lund, Sweden.
Robert LansingDepartment of Psychology, University of Arizona Tucson, Arizona, USA.
Peter AnderbergDepartment of Health, Blekinge Institute of Technology, Karlskrona, Sweden.
David CurrowWolfson Palliative Care Research Centre, Hull York Medical School, University of Hull, Hull, UK.
Josefin SundhDepartment of Respiratory Medicine, School of Medical Sciences, Örebro University, Örebro, Sweden.
Zainab AhmadiDepartment of Clinical Sciences, Division of Respiratory Medicine and Allergology, Lund University, Lund, Sweden.
Sebastian PalmqvistClinical Memory Research Unit, Sweden, Lund, University, Neurology Clinic, Skåne University Hospital, Sweden, Europe.
Magnus EkströmDepartment of Clinical Sciences, Division of Respiratory Medicine and Allergology, Lund University, Lund, Sweden.ORCID 0000-0002-7227-5113

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: Breathlessness, the subjective sensation of breathing discomfort, is common and appears in the daily life of people with cardiorespiratory diseases. Physicians often rely on patient's history based on symptom recall. The relation between recalled and experienced breathlessness is still poorly understood. This paper presents the protocol for a study primarily aimed at evaluating the relationship between experienced breathlessness and (1) recalled breathlessness and (2) predicted future breathlessness. Methods: A mobile phone application will be used to collect data during daily life. Medically stable participants, ≥18 years of age with mean daily breathlessness of Numerical Rating Scale (NRS) 3/10 and able to use a mobile phone with internet will rate their breathlessness intensity on a 0-10 NRS prompted the user several times daily for 1 week. Participants will recall their breathlessness each day and week. Multivariable random effects regression models will be used for statistical analyses. Results: Results of the study will be submitted for publication in peer-reviewed journals and presented at relevant conferences. Discussion: This protocol describes a study aimed at investigating previously unknown areas of the experience and recall of breathlessness using a new method of data collection. Registration details: Prospectively registered with ClinicalTrials.gov (Nr: NCT03468205). Ethics and dissemination: The study has received ethical approval from the Regional Ethical Review Board Lund (DNr 2017/149). After a general study information including that participation is entirely voluntary, participants will answer the eligibility criteria and be asked to consent to participate before entering the study questions. Written informed consent to participate will be obtained for participants in the clinical sub-cohort. Participation can be discontinued at the discretion of the participant in which case no further data will be collected.

Indexed as

Mental RecallMobile ApplicationsSeverity of Illness IndexAdultCell PhoneData CollectionDyspneaFemaleHumansLogistic ModelsMaleObservational Studies as TopicProspective StudiesResearch DesignSelf Reportappbreathlessnesscohort studydyspnoeamobile phone applicationrecall

Identifiers

PMID30956800
PMCPMC6424247

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.