Evidence map›Paper›PMID 30950106›Full record

ArticleInternational journal of geriatric psychiatry2019

The costs of dementia in England.

Raphael Wittenberg, Martin Knapp, Bo Hu, Adelina Comas-Herrera, Derek King, Amritpal Rehill, Cheng Shi, Sube Banerjee, Anita Patel, Carol Jagger and 1 more

Open access · hybridAbstract read
In one paragraph

Article in International journal of geriatric psychiatry, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 59 papers, 6 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
59citing papers in PubMed, 6 pooled it
39.5field-weighted citation impact, top 1% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

59 citing papers in PubMed, 6 syntheses or guidelines pooled it, 157 citations in OpenAlex.

  1. Pooled it
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  12. The adult social care outcomes toolkit easy read for older people (ASCOT-ER OP): an exploratory factor analysis and Rasch validation study.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026
    Article
  13. Grandad forgot my name: interactive narratives for dementia support.Primary health care research & development · 2026
    Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors at 5 institutions in 2 countries.

Raphael WittenbergPersonal Social Services Research Unit (PSSRU), Department of Health Policy, London School of Economics and Political Science, London, UK.ORCID 0000-0003-3096-2721
Martin KnappPersonal Social Services Research Unit (PSSRU), Department of Health Policy, London School of Economics and Political Science, London, UK.
Bo HuPersonal Social Services Research Unit (PSSRU), Department of Health Policy, London School of Economics and Political Science, London, UK.ORCID 0000-0002-5256-505X
Adelina Comas-HerreraPersonal Social Services Research Unit (PSSRU), Department of Health Policy, London School of Economics and Political Science, London, UK.
Derek KingPersonal Social Services Research Unit (PSSRU), Department of Health Policy, London School of Economics and Political Science, London, UK.
Amritpal RehillPersonal Social Services Research Unit (PSSRU), Department of Health Policy, London School of Economics and Political Science, London, UK.
Cheng ShiPersonal Social Services Research Unit (PSSRU), Department of Health Policy, London School of Economics and Political Science, London, UK.
Sube BanerjeeCentre for Dementia Studies, Brighton and Sussex Medical School, University of Sussex, Brighton, UK.
Anita PatelAnita Patel Health Economics Consulting Ltd, London, UK.
Carol JaggerInstitute for Ageing, Newcastle University, Newcastle upon Tyne, UK.
Andrew KingstonInstitute for Ageing, Newcastle University, Newcastle upon Tyne, UK.
London School of Economics and Political Science · GBNewcastle Hospitals - Campus for Ageing and Vitality · GBBrighton and Sussex Medical School · GBOffice Of Health Economics · GBRenmin University of China · CN

Funding

Department of Health
6 · The paper itself

Abstract

objectivesThis study measures the average per person and annual total costs of dementia in England in 2015. METHODS/

designUp-to-date data for England were drawn from multiple sources to identify prevalence of dementia by severity, patterns of health and social care service utilisation and their unit costs, levels of unpaid care and its economic impacts, and other costs of dementia. These data were used in a refined macrosimulation model to estimate annual per-person and aggregate costs of dementia.

resultsThere are around 690 000 people with dementia in England, of whom 565 000 receive unpaid care or community care or live in a care home. Total annual cost of dementia in England is estimated to be £24.2 billion in 2015, of which 42% (£10.1 billion) is attributable to unpaid care. Social care costs (£10.2 billion) are three times larger than health care costs (£3.8 billion). £6.2 billion of the total social care costs are met by users themselves and their families, with £4.0 billion (39.4%) funded by government. Total annual costs of mild, moderate, and severe dementia are £3.2 billion, £6.9 billion, and £14.1 billion, respectively. Average costs of mild, moderate, and severe dementia are £24 400, £27 450, and £46 050, respectively, per person per year.

conclusionsDementia has huge economic impacts on people living with the illness, their carers, and society as a whole. Better support for people with dementia and their carers, as well as fair and efficient financing of social care services, are essential to address the current and future challenges of dementia.

Indexed as

Health Care CostsAdultAgedAged, 80 and overCaregiversCost of IllnessDementiaEnglandFemaleHumansMaleMiddle AgedPrevalencecost of illnesscostsdementiaEnglandhealth caresocial careunpaid care

Identifiers

PMID30950106
PMCPMC6618309
OpenAlexW2928884861

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.