Evidence map›Paper›PMID 30948647›Full record

ArticleCMAJ open

Information needs of francophone health care professionals and the public with regard to medical assistance in dying in Quebec: a qualitative study.

Antoine Boivin, François-Pierre Gauvin, Geneviève Garnon, Agustina Gancia, Ghislaine Rouly, Isabelle Marcoux, Pascale Lehoux

Open access · diamondAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in CMAJ open. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed, 1 pooled it
0.9field-weighted citation impact, top 24% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed, 1 synthesis or guideline pooled it, 12 citations in OpenAlex.

  1. Factors That Influence Access to Medical Assistance in Dying Services: An Integrative Review.Health expectations : an international journal of public participation in health care and health policy · 2024
    Pooled it
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 1 institution in 1 country.

Antoine BoivinCentre of Excellence on Partnership with Patients and the Public (Boivin, Gauvin, Garnon, Gancia, Rouly); Department of Family and Emergency Medicine (Boivin), Université de Montréal; Department of Management, Evaluation and Health Policy (Boivin, Lehoux), School of Public Health, Université de Montréal, Montréal, Que.; Interdisciplinary School of Health Sciences (Marcoux), University of Ottawa, Ottawa, Ont.; Department of Health Research Methods, Evidence, and Impact (Gauvin), Centre for Health Economics and Policy Analysis, McMaster University, Hamilton, Ont. Antoine.boivin@umontreal.ca.
François-Pierre GauvinCentre of Excellence on Partnership with Patients and the Public (Boivin, Gauvin, Garnon, Gancia, Rouly); Department of Family and Emergency Medicine (Boivin), Université de Montréal; Department of Management, Evaluation and Health Policy (Boivin, Lehoux), School of Public Health, Université de Montréal, Montréal, Que.; Interdisciplinary School of Health Sciences (Marcoux), University of Ottawa, Ottawa, Ont.; Department of Health Research Methods, Evidence, and Impact (Gauvin), Centre for Health Economics and Policy Analysis, McMaster University, Hamilton, Ont.
Geneviève GarnonCentre of Excellence on Partnership with Patients and the Public (Boivin, Gauvin, Garnon, Gancia, Rouly); Department of Family and Emergency Medicine (Boivin), Université de Montréal; Department of Management, Evaluation and Health Policy (Boivin, Lehoux), School of Public Health, Université de Montréal, Montréal, Que.; Interdisciplinary School of Health Sciences (Marcoux), University of Ottawa, Ottawa, Ont.; Department of Health Research Methods, Evidence, and Impact (Gauvin), Centre for Health Economics and Policy Analysis, McMaster University, Hamilton, Ont.
Agustina GanciaCentre of Excellence on Partnership with Patients and the Public (Boivin, Gauvin, Garnon, Gancia, Rouly); Department of Family and Emergency Medicine (Boivin), Université de Montréal; Department of Management, Evaluation and Health Policy (Boivin, Lehoux), School of Public Health, Université de Montréal, Montréal, Que.; Interdisciplinary School of Health Sciences (Marcoux), University of Ottawa, Ottawa, Ont.; Department of Health Research Methods, Evidence, and Impact (Gauvin), Centre for Health Economics and Policy Analysis, McMaster University, Hamilton, Ont.
Ghislaine RoulyCentre of Excellence on Partnership with Patients and the Public (Boivin, Gauvin, Garnon, Gancia, Rouly); Department of Family and Emergency Medicine (Boivin), Université de Montréal; Department of Management, Evaluation and Health Policy (Boivin, Lehoux), School of Public Health, Université de Montréal, Montréal, Que.; Interdisciplinary School of Health Sciences (Marcoux), University of Ottawa, Ottawa, Ont.; Department of Health Research Methods, Evidence, and Impact (Gauvin), Centre for Health Economics and Policy Analysis, McMaster University, Hamilton, Ont.
Isabelle MarcouxCentre of Excellence on Partnership with Patients and the Public (Boivin, Gauvin, Garnon, Gancia, Rouly); Department of Family and Emergency Medicine (Boivin), Université de Montréal; Department of Management, Evaluation and Health Policy (Boivin, Lehoux), School of Public Health, Université de Montréal, Montréal, Que.; Interdisciplinary School of Health Sciences (Marcoux), University of Ottawa, Ottawa, Ont.; Department of Health Research Methods, Evidence, and Impact (Gauvin), Centre for Health Economics and Policy Analysis, McMaster University, Hamilton, Ont.
Pascale LehouxCentre of Excellence on Partnership with Patients and the Public (Boivin, Gauvin, Garnon, Gancia, Rouly); Department of Family and Emergency Medicine (Boivin), Université de Montréal; Department of Management, Evaluation and Health Policy (Boivin, Lehoux), School of Public Health, Université de Montréal, Montréal, Que.; Interdisciplinary School of Health Sciences (Marcoux), University of Ottawa, Ottawa, Ont.; Department of Health Research Methods, Evidence, and Impact (Gauvin), Centre for Health Economics and Policy Analysis, McMaster University, Hamilton, Ont.
Université de Montréal · CA

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundIn 2016, the Canadian government legalized medical assistance in dying (MAiD) for adults with terminal illness. The objective of this study was to explore the information needs of health care professionals and members of the public regarding MAiD.

methodsThis was a qualitative study involving a 1-day face-to-face forum followed by a 3-week online forum across the province of Quebec conducted in June 2016. French-speaking participants targeted for the study included members of the public (citizens, patients and caregivers) and health care professionals. Participants were recruited through calls for applications to a patient partner network and via social media, and through mailing lists of partner professional and community organizations across Quebec. We used a purposeful sampling strategy to recruit a diverse group of participants. In the forums, deliberations were prompted by short informational videos about MAiD. We performed a thematic analysis to identify key information needs.

resultsFifty members of the public and 35 health care professionals participated. Forty-three people participated in the face-to-face meeting, and 42 people participated online. Participants identified 32 information needs (22 expressed by both members of the public and health care professionals, and 10 specific to members of the public) regarding the definition of MAiD, eligibility criteria, and documenting and evaluating practices. Information needs varied along different stages of the patient's journey. Participants expressed the need to be informed about issues that go beyond the medical and legal aspects of MAiD (e.g., relational, symbolic, psychological and spiritual aspects).

interpretationThe findings show that health care professionals and members of the public have common information needs regarding MAiD and seek information on the relational, emotional and symbolic aspects of this practice. These findings call for concerted efforts to build a common information base - covering dimensions that go beyond the medical and legal aspects of MAiD - to facilitate informed conversations among patients, health care professionals and members of the public.

Identifiers

PMID30948647
PMCPMC6450793
OpenAlexW2927592699

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.