ArticlePatient education and counseling2019
What patient involvement means to new patients at two HIV clinics: A longitudinal, qualitative study.
Article in Patient education and counseling, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.
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Who cites it
2 citing papers in PubMed.
- Patients' Experiences with Refilling their HIV Medicines: Facilitators and Barriers to On-Time Refills.The Permanente journal · 2020Article
- The psychology of the wait time experience - what clinics can do to manage the waiting experience for patients: a longitudinal, qualitative study.BMC health services research · 2019Article
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Authors and funding
7 authors.
Funding
Abstract
objectivesThis study 1) defines patient involvement from the perspective of patients new to a provider, 2) describes provider communication that patients perceive as promoting involvement, and 3) examines changes in patient definitions of involvement over time.
methodsWe enrolled 56 patients at two HIV clinics in Houston, Texas, from August 2013 until March 2015. We interviewed patients three times during the first year of care and analyzed interviews using content analysis.
resultsThe mean age was 45 years; 54% were men. Patient definitions of involvement ranged from adherence- to decision-oriented. Analysis revealed three provider communication behaviors that patients perceive as promoting involvement: 1) soliciting patient feedback, 2) discussing treatment options and trade-offs, 3) narrating the decision-making process. Definitions of involvement can change over time as providers reframe the patient's illness as manageable and through perceived partnerships with the provider.
conclusionProvider communication plays a critical role in shaping new patients' perception of involvement and can make patients feel involved even when patients do not actively make medical decisions. PRACTICAL IMPLICATIONS: Finding strategies to make patients feel involved in their care is important, particularly for new patients, even if those strategies do not necessarily promote more talk from the patient.
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