ArticleJournal of the American Medical Informatics Association : JAMIA2019
Patient experience with family history tool: analysis of patients' experience sharing their family health history through patient-computer dialogue in a patient portal.
Article in Journal of the American Medical Informatics Association : JAMIA, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
10 citing papers in PubMed, 1 synthesis or guideline pooled it, 23 citations in OpenAlex.
- The Impact of Digital Patient Portals on Health Outcomes, System Efficiency, and Patient Attitudes: Updated Systematic Literature Review.Journal of medical Internet research · 2021Pooled it
- The Effects of Website Traits and Medical Skepticism on Patients' Willingness to Follow Web-Based Medical Advice: Web-Based Experiment.Journal of medical Internet research · 2022Trial
- Combining family history and alcohol screening measures to identify emerging adults at risk of not being in education, employment, or training (NEET).Social psychiatry and psychiatric epidemiology · 2025Article
- Barriers to Patient Portal Adoption Among a Bilingual Patient Population by Analysis of Survey Findings from English- and Spanish-Speaking Patients: Information Needs Study.JMIR formative research · 2025Article
- Knowledge, attitudes, and practices regarding keratopathy among diabetic patients.BMC public health · 2024Article
- Leveraging an Electronic Health Record Patient Portal to Help Patients Formulate Their Health Care Goals: Mixed Methods Evaluation of Pilot Interventions.JMIR formative research · 2024Article
- Patients Managing Their Medical Data in Personal Electronic Health Records: Scoping Review.Journal of medical Internet research · 2022Article
- Patient portals for the adolescent and young adult population: Benefits, risks and guidance for use.Current problems in pediatric and adolescent health care · 2021Article
- The importance of consumer- and patient-oriented perspectives in biomedical and health informatics.Journal of the American Medical Informatics Association : JAMIA · 2019Article
- User experience of a family health history chatbot: A quantitative analysis.Health informatics journalArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 3 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveThe collection and use of a family health history are important for assessing the patient's risk of disease, but history taking is often impeded by practical barriers in the office. Provision for patient-computer dialogue, linked with the electronic health record, may enable patients to contribute their history while bypassing these barriers. We sought to assess the patient experience using such a tool. MATERIALS AND
methodsWe linked the family history module of a computer-based medical history to the patient portal of a large academic health system. The interview consisted of 39 primary questions with a predetermined high test-retest reliability. Patients' results were structured and summarized, and available within their electronic health record. Patients optionally completed a survey about their experience. We inductively analyzed free-text responses collected between 2014 and 2016.
resultsAmong 97 781 patient portal users, 9562 patients accessed and 4223 patients completed the family medical history interview. Of these patients, 1451 completed our survey. Main themes that were identified included (1) patient empowerment, (2) anticipated value, (3) validity concerns, (4) privacy concerns, and (5) reflections on patient-computer dialogue. Patients also provided suggestions for the improvement of future family history tools. DISCUSSION: Patients providing their family health information is an example of collaborative electronic work with clinicians and was seen as valuable by those who participated. Concerns related to contextual information and uncertainty need to be addressed.
conclusionsPatient-computer dialogue to collect family medical history empowered patients and added perceived value and efficiency to the patient experience of care.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.