Evidence map›Paper›PMID 30945897›Full record

ArticleThe American psychologist2019

Impacting development in infants with tuberous sclerosis complex: Multidisciplinary research collaboration.

Marian E Williams, Deborah A Pearson, Jamie K Capal, Anna W Byars, Donna S Murray, Robin Kissinger, Sarah E O'Kelley, Ellen Hanson, Nicole M Bing, Bridget Kent and 6 more

Open access · hybridAbstract read
In one paragraph

Article in The American psychologist, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
9citing papers in PubMed, 1 pooled it
1.0field-weighted citation impact, top 23% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

9 citing papers in PubMed, 1 synthesis or guideline pooled it, 12 citations in OpenAlex.

  1. Pooled it
  2. Article
  3. Review
  4. Article
  5. Article
  6. Review
  7. Review
  8. Article
  9. Resting-State fMRI Networks in Children with Tuberous Sclerosis Complex.Journal of neuroimaging : official journal of the American Society of Neuroimaging · 2019
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

16 authors at 7 institutions in 1 country.

Marian E WilliamsUniversity of Southern California.ORCID 0000-0003-1365-919X
Deborah A PearsonUniversity of Texas Health Science Center at Houston.ORCID 0000-0003-2047-1013
Jamie K CapalCincinnati Children's Hospital Medical Center.ORCID 0000-0002-7579-375X
Anna W ByarsCincinnati Children's Hospital Medical Center.
Donna S MurrayCincinnati Children's Hospital Medical Center.
Robin KissingerChildren's Hospital Los Angeles.ORCID 0000-0003-3829-8837
Sarah E O'KelleyUniversity of Alabama at Birmingham.
Ellen HansonBoston Children's Hospital.
Nicole M BingCincinnati Children's Hospital Medical Center.
Bridget KentCincinnati Children's Hospital Medical Center.
Joyce Y WuUniversity of California.
Hope NorthrupUniversity of Texas Health Science Center at Houston.
E Martina BebinUniversity of Alabama at Birmingham.
Mustafa SahinBoston Children's Hospital.ORCID 0000-0001-7044-2953
Darcy KruegerCincinnati Children's Hospital Medical Center.
TACERN Study Group
Cincinnati Children's Hospital Medical Center · USBoston Children's Hospital · USChildren's Hospital of Los Angeles · USThe University of Texas Health Science Center at Houston · USUniversity of Alabama at Birmingham · USUniversity of California System · USUniversity of Southern California · US

Funding

Early Biomarkers of Autism Spectrum Disorders in infants with Tuberous SclerosisU01NS082320 · NINDS · BOSTON CHILDREN'S HOSPITAL · PI KRUEGER, DARCY, SAHIN, MUSTAFA · 2012 to 2018
$13.3M
Eunice Kennedy Shriver National Institute of Child Health and Human DevelopmentNINDS NIH HHS U01 NS082320
6 · The paper itself

Abstract

The Tuberous Sclerosis Complex Autism Center of Excellence Network (TACERN) is a 6-site collaborative conducting longitudinal research on infants with tuberous sclerosis complex (TSC), focused on identifying early biomarkers for autism spectrum disorder (ASD). A multidisciplinary research team that includes the specialties of psychology, neurology, pediatrics, medical genetics, and speech-language pathology, its members work together to conduct studies on neurological status, brain structure and function, neurodevelopmental phenotype, and behavioral challenges in this population. This article provides insights into the roles of the multidisciplinary multisite team and lessons learned from the collaboration, in terms of research as well as training of future researchers and clinicians. In addition, the authors detail the major findings to date, including those related to the identification and measurement of early symptoms of ASD, relationship between seizures and early development, and early biomarkers for epilepsy and developmental delay in infants and young children with TSC. (PsycINFO Database Record (c) 2019 APA, all rights reserved).

Indexed as

Interdisciplinary ResearchDevelopmental DisabilitiesEpilepsyHumansInfantLongitudinal StudiesTuberous Sclerosis

Identifiers

PMID30945897
PMCPMC6612428
OpenAlexW2932651135

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.