ArticleEGEMS (Washington, DC)2019
Learning to Share Health Care Data: A Brief Timeline of Influential Common Data Models and Distributed Health Data Networks in U.S. Health Care Research.
Article in EGEMS (Washington, DC), 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 49 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
49 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Pharmacoepidemiologic Research Based on Common Data Models: Systematic Review and Bibliometric Analysis.JMIR medical informatics · 2025Pooled it
- Development and Application of an Active Pharmacovigilance Framework Based on Electronic Healthcare Records from Multiple Centers in Korea.Drug safety · 2023Pooled it
- Evaluation of Research Accessibility and Data Elements of HIV Registries.Current HIV research · 2019Pooled it
- Advancing the Implementation of Patient-Centered Outcomes in Rehabilitation Learning Health Systems: Insights From the 2024 LeaRRn Summit.Archives of physical medicine and rehabilitation · 2026Article
- Core Concepts in Pharmacoepidemiology: Multi-Database Distributed Data Networks.Pharmacoepidemiology and drug safety · 2025Review
- The PRO-AGE Tool and Its Association With Post Discharge Outcomes in Older Adults Admitted From the Emergency Department.Journal of the American Geriatrics Society · 2025Observational
- SARS-CoV-2 Omicron subvariant genomic variation associations with immune evasion in Northern California: A retrospective cohort study.PloS one · 2025Article
- Big data research is everyone's research-Making epilepsy data science accessible to the global community: Report of the ILAE big data commission.Epileptic disorders : international epilepsy journal with videotape · 2024Review
- Coverage of Physical Therapy Assessments in the Observational Medical Outcomes Partnership Common Data Model.Applied clinical informatics · 2024Article
- Centralized and Federated Models for the Analysis of Clinical Data.Annual review of biomedical data science · 2024Review
- Assessing readiness to use electronic health record data for outcome ascertainment in clinical trials - A case study.Contemporary clinical trials · 2024Article
- [Interoperability Working Group: core dataset and information systems for data integration and data exchange in the Medical Informatics Initiative].Bundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz · 2024Article
- Article
- Impact of COVID-19 on myalgic encephalomyelitis/chronic fatigue syndrome-like illness prevalence: A cross-sectional survey.PloS one · 2024Article
- An AdaBoost-based algorithm to detect hospital-acquired pressure injury in the presence of conflicting annotations.Computers in biology and medicine · 2024Article
- Advancing Toward a Common Data Model in Ophthalmology: Gap Analysis of General Eye Examination Concepts to Standard Observational Medical Outcomes Partnership (OMOP) Concepts.Ophthalmology science · 2023Article
- Severe Acute Respiratory Syndrome Coronavirus 2 Delta Variant Genomic Variation Associated With Breakthrough Infection in Northern California: A Retrospective Cohort Study.The Journal of infectious diseases · 2023Article
- Mapping the Oncological Basis Dataset to the Standardized Vocabularies of a Common Data Model: A Feasibility Study.Cancers · 2023Article
- Neighborhood attributes and cardiovascular disease risk in breast cancer survivors: The Pathways Study.Cancer · 2023Article
- Common data model for sickle cell disease surveillance: considerations and implications.JAMIA open · 2023Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
The last twenty years of health care research has seen a steady stream of common health care data models implemented for multi-organization research. Each model offers a uniform interface on data from the diverse organizations that implement them, enabling the sharing of research tools and data. While the groups designing the models have had various needs and aims, and the data available has changed significantly in this time, there are nevertheless striking similarities between them. This paper traces the evolution of common data models, describing their similarities and points of departure. We believe the history of this work should be understood and preserved. The work has empowered collaborative research across competing organizations and brought together researchers from clinical practice, universities and research institutes around the planet. Understanding the eco-system of data models designed for collaborative research allows readers to evaluate where we have been, where we are going as a field, and to evaluate the utility of different models to their own work.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.