ArticleThe Medical journal of Australia2019
Gathering data for decisions: best practice use of primary care electronic records for research.
Article in The Medical journal of Australia, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 49 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
49 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Ethical issues raised by artificial intelligence and big data in population health: a scoping review.Frontiers in sociology · 2025Pooled it
- Evidence based models of care for the treatment of alcohol use disorder in primary health care settings: a systematic review.BMC family practice · 2020Pooled it
- The impact of removing financial incentives and/or audit and feedback on chlamydia testing in general practice: A cluster randomised controlled trial (ACCEPt-able).PLoS medicine · 2022Trial
- Towards best practice recommendations: Perspectives from Australian GPs to inform the use of general practice data for research - A modified Delphi study.The European journal of general practice · 2026Article
- Improving Proactive Primary Health Care After Gestational Diabetes: Protocol for Implementation and Evaluation of a Quality Improvement Collaborative Program in General Practice (GooD4Mum) and Baseline Practice Characteristics.JMIR research protocols · 2026Article
- Attitudes towards data access and sharing health data for research: a case study of Australian data custodian perspectives.Health information management : journal of the Health Information Management Association of Australia · 2026Article
- Decision support tools for pancreatic cancer detection: external validation in Australian primary care - a retrospective cohort study.The British journal of general practice : the journal of the Royal College of General Practitioners · 2026Article
- Diagnostic Delays in Thoracic Cancer Care: A Data-Linkage, Cohort Study between Primary Care, Hospital, and Registry Data.Health data science · 2026Article
- Unlocking insights: general practice staff perspectives on sharing general practice data for research - a scoping review.BMC primary care · 2025Article
- Using general practice data for chronic disease prevalence: the impact of record linkage on estimation accuracy.BMC medical informatics and decision making · 2025Article
- Article
- Cataloguing and evaluating Irish health data resources for primary care cancer research.BJC reports · 2025Review
- Article
- Transparency in the secondary use of health data: assessing the status quo of guidance and best practices.Royal Society open science · 2025Article
- Clinical activity in general practice before sarcoma diagnosis: an Australian cohort study.The British journal of general practice : the journal of the Royal College of General Practitioners · 2024Article
- Trends in primary care blood tests prior to lung and colorectal cancer diagnosis-A retrospective cohort study using linked Australian data.Cancer medicine · 2024Article
- Undercounting diagnoses in Australian general practice: a data quality study with implications for population health reporting.BMC medical informatics and decision making · 2024Article
- Data Resource Profile: Primary Care Audit, Teaching and Research Open Network (Patron).International journal of epidemiology · 2024Article
- VigiNUTRI Brasil: methods of request, data extraction, treatment and consistency analysis of individual data from adolescents monitored by the Food and Nutrition Surveillance System (Sisvan Web).Epidemiologia e servicos de saude : revista do Sistema Unico de Saude do Brasil · 2024Article
- Data Resource Profile: Victorian Comprehensive Cancer Centre Data Connect.International journal of epidemiology · 2023Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
9 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
In Australia, there is limited use of primary health care data for research and for data linkage between health care settings. This puts Australia behind many developed countries. In addition, without use of primary health care data for research, knowledge about patients' journeys through the health care system is limited. There is growing momentum to establish "big data" repositories of primary care clinical data to enable data linkage, primary care and population health research, and quality assurance activities. However, little research has been conducted on the general public's and practitioners' concerns about secondary use of electronic health records in Australia. International studies have identified barriers to use of general practice patient records for research. These include legal, technical, ethical, social and resource-related issues. Examples include concerns about privacy protection, data security, data custodians and the motives for collecting data, as well as a lack of incentives for general practitioners to share data. Addressing barriers may help define good practices for appropriate use of health data for research. Any model for general practice data sharing for research should be underpinned by transparency and a strong legal, ethical, governance and data security framework. Mechanisms to collect electronic medical records in ethical, secure and privacy-controlled ways are available. Before the potential benefits of health-related data research can be realised, Australians should be well informed of the risks and benefits so that the necessary social licence can be generated to support such endeavours.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.