ArticlePloS one2019
The influence of the 'good' patient ideal on engagement in HIV care.
Article in PloS one, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
18 citing papers in PubMed.
- Trends in HIV Viral Suppression in the POP-UP Low-Barrier Care Program for People With HIV Experiencing Homelessness or Unstable Housing.Open forum infectious diseases · 2026Article
- POP-UP Mobile: A Mixed Methods Study of Mobile Outreach for People with HIV with Housing Instability Who Are Out of Care from a Low-Barrier Clinical Program in San Francisco.AIDS patient care and STDs · 2025Article
- Learning from the first: a qualitative study of the psychosocial benefits and treatment burdens of long-acting cabotegravir/rilpivirine among early adopters in three U.S. clinics.Journal of the International AIDS Society · 2024Article
- Effective Messages to Reduce Stigma among People Newly Diagnosed with HIV during Rapid ART Initiation.International journal of environmental research and public health · 2024Article
- Understanding the causes of missingness in primary care: a realist review.BMC medicine · 2024Review
- How young adults with sickle cell disease define "being a good patient" in the adult healthcare system.Pediatric blood & cancer · 2024Article
- Assessing readiness to implement long-acting injectable HIV antiretroviral therapy: provider and staff perspectives.Implementation science communications · 2023Article
- The Brief Human Immunodeficiency Virus (HIV) Index: A Rapid 3-Item Scale to Measure Engagement in HIV Care.Clinical infectious diseases : an official publication of the Infectious Diseases Society of America · 2023Article
- Implementation of Low-Barrier Human Immunodeficiency Virus Care: Lessons Learned From the Max Clinic in Seattle.Clinical infectious diseases : an official publication of the Infectious Diseases Society of America · 2023Review
- Describing Engagement in the HIV Care Cascade: A Methodological Study.HIV/AIDS (Auckland, N.Z.) · 2023Article
- Cyclical Engagement in HIV Care: A Qualitative Study of Clinic Transfers to Re-enter HIV Care in Cape Town, South Africa.AIDS and behavior · 2022Article
- Understanding the Risks and Benefits of a Patient Portal Configured for HIV Care: Patient and Healthcare Professional Perspectives.Journal of personalized medicine · 2022Article
- The Human Immunodeficiency Virus (HIV) Index: Using a Patient-Reported Outcome on Engagement in HIV Care to Explain Suboptimal Retention in Care and Virologic Control.Clinical infectious diseases : an official publication of the Infectious Diseases Society of America · 2021Article
- 'Staying alive' with antiretroviral therapy: a grounded theory study of people living with HIV in Peru.BMJ global health · 2021Article
- Power of Big Data in ending HIV.AIDS (London, England) · 2021Article
- mHealth Interventions to Promote Anti-Retroviral Adherence in HIV: Narrative Review.JMIR mHealth and uHealth · 2020Review
- Measuring engagement in HIV care: Measurement invariance in three racial/ethnic patient groups.Health psychology : official journal of the Division of Health Psychology, American Psychological Association · 2020Article
- "It's Me as a Person, Not Me the Disease": Patient Perceptions of an HIV Care Model Designed to Engage Persons with Complex Needs.AIDS patient care and STDs · 2020Article
Corrections and comments
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Authors and funding
9 authors.
Funding
Abstract
Research on patient engagement in health care shows that better health outcomes and lower healthcare costs are observed among highly engaged patients. Similar to other illnesses, high levels of patient engagement in HIV care are considered essential to maintaining optimal health, and patients who are on treatment and retained in HIV care are known to have better health outcomes. In this article, we draw on focus group discussion data with patients living with HIV in order to explain tacit expectations associated with engagement in care. The main objective of our research was to elicit an explanatory model of engagement in HIV care from the patients' perspective. We conducted focus group discussions with a sample of two distinct types of patients: those who regularly attended medical appointments and those who did not. In total, we conducted six focus group discussions (n = 43) across in three cities in the US; these included two focus group discussions with a well-engaged and less-well-engaged group in each location. Both types of patients assigned a moral dimension to engagement in care, in that well-engaged patients were considered to be 'good' patients. Aspiring to become a 'good' patient provided a meaningful goal for some and deepened vulnerabilities among patients that struggled to achieve this status. More vulnerable patients may feel less secure in health care interactions and these feelings may be amplified if patients have an unreasonable impression of what constitutes a 'good' patient; thereby leading to disengagement in care. Our findings can inform the development of patient-centered, tailored messages to better serve patients struggling to stay engaged in HIV care.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.