ArticleNursing open2019
A qualitative study of experiences of health and social care in home mechanical ventilation.
Article in Nursing open, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
8 citing papers in PubMed, 1 synthesis or guideline pooled it, 9 citations in OpenAlex.
- Experiences and support needs of patients receiving home mechanical ventilation and their caregivers: a qualitative meta-synthesis.Frontiers in public health · 2026Pooled it
- Psychosocial Well-Being of Informal Caregivers of Adults Receiving Home Mechanical Ventilation: A Scoping Review.Journal of clinical medicine · 2025Review
- Quality of Life and Stress Levels in Patients under Home Mechanical Ventilation: What Can We Do to Improve Functioning Patients at Home? A Survey Study.International journal of environmental research and public health · 2023Article
- Mental health reported in adult invasive home mechanical ventilation through a tracheostomy: A scoping review.International journal of nursing studies advances · 2022Article
- Review
- Home Mechanical Ventilation: A Patient's Perspective Survey Study.International journal of environmental research and public health · 2021Article
- Experiences and views of patients, carers and healthcare professionals on using modems in domiciliary non-invasive ventilation (NIV): a qualitative study.BMJ open respiratory research · 2020Article
- A qualitative study of experiences of health and social care in home mechanical ventilation.Nursing open · 2019Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
aimTo contribute insight into health and social care integration through an exploration of the care experiences of adults with degenerative neuromuscular conditions who use a mechanical ventilator at home.
designDescriptive qualitative research.
methodsSeventeen semi-structured interviews were conducted with patients and family carers living in Scotland during 2015-2016 and thematically analysed.
resultsTo achieve a satisfying life, home ventilated participants required help from a variety of health and social care services, as well as care from family. Examples of successful care were identified, but there were also serious failures and conflict with services. Identifying how care fails or succeeds for this patient population and their families requires an understanding of the interdependency of health and social care. This was achieved by examining health and social care provision from the experiential perspective of care-users to provide insights into how disconnected provision has an impact on users' lives in numerous, idiosyncratic ways.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.