ArticlePalliative medicine2019
The experience of family caregivers of patients with cancer in an Asian country: A grounded theory approach.
Article in Palliative medicine, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06517992 (Collaborative cOMMUNIty Care for Metastatic breAsT cancEr Patients in inDonesia), which is not on this map. Cited by 38 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Collaborative cOMMUNIty Care for Metastatic breAsT cancEr Patients in inDonesia (Communicated)
Who cites it
38 citing papers in PubMed, 1 synthesis or guideline pooled it.
- The benefits of early palliative care on psychological well-being, functional status, and health-related quality of life among cancer patients and their caregivers: a systematic review and meta-analysis.BMC palliative care · 2025Pooled it
- Moral Distress Among Family Caregivers: A Concept Analysis.Journal of advanced nursing · 2026Review
- Care-full negotiation of hospital discharge and end-of-life care in an Indonesian palliative care unit.Medical anthropology quarterly · 2026Article
- "Our culture doesn't welcome seeing caring for older people as a burden": understanding older adults' experiences of coping with unpaid caregiving in Nigeria.The journals of gerontology. Series B, Psychological sciences and social sciences · 2026Article
- "God will prosper you for doing this for me": a phenomenological exploration of older carers' experiences of informal caregiving in Nigeria.The Gerontologist · 2026Article
- The Value of Implicitness: An Empirical Ethics Analysis of Indonesian Everyday Family Involvement in a Palliative Care Setting.Asian bioethics review · 2026Article
- Choice, struggle, and resilience: the experience of pre-loss grief among Chinese family caregivers of cancer patients.BMC palliative care · 2025Article
- Cross-cultural adaption and psychometric validation of Importance of Good Death-Indonesian version for patients with advanced cancer.Asia-Pacific journal of oncology nursing · 2025Article
- Family participation in dignity interventions for patients with cancer receiving palliative care: A scoping review.Asia-Pacific journal of oncology nursing · 2025Review
- The Role of Religion and Culture in Intergenerational Transnational Caregiving: Perspectives from Nigerian Christian Immigrants in Northern BC.Behavioral sciences (Basel, Switzerland) · 2025Article
- Spiritual Well-Being and Care Burden among Families of Patients with Terminal Cancer: Is Emotional Distress a Crucial Thing?Journal of hospice and palliative care · 2025Article
- Delivering psychosocial support to family caregivers of cancer patients: Insights from Iranian psychosocial oncology professionals and family caregivers highlighting the need for change.Palliative & supportive care · 2025Article
- Article
- The perceived levels of stress, anxiety and depression among family caregivers of patients undergoing haemodialysis and their association with quality of life.BJPsych open · 2025Article
- Examining the relations between psychosocial and caregiving factors with mental health among Vietnamese family caregivers of hospitalized lung cancer patients.Scientific reports · 2025Article
- Family caregivers' role in dignity: A qualitative study can we change the title to : Dignity in Serious Illness: A Qualitative Exploration of Family Caregivers' Contributions in low middle-income country.Palliative & supportive care · 2025Article
- Supportive care needs of the family caregivers of urostomy patients: a qualitative study.Scientific reports · 2025Article
- Article
- Devotion to Family: Coping Strategy to Reduce Burden of Caregiving Stroke Patients.Occupational therapy international · 2025Article
- Effects of trauma-related amputations in children on caregivers: An exploratory descriptive study in a developing country.PloS one · 2025Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundStrong family bonds are part of the Indonesian culture. Family members of patients with cancer are intensively involved in caring, also in hospitals. This is considered "normal": a societal and religious obligation. The values underpinning this might influence families' perception of it.
aimTo explore and model experiences of family caregivers of patients with cancer in Indonesia in performing caregiving tasks.
designA grounded theory approach was applied. The constant comparative method was used for data analysis and a paradigm scheme was employed for developing a theoretical model. SETTING/
participantsThe study was conducted in three hospitals in Indonesia. The participants were family caregivers of patients with cancer.
resultsA total of 24 family caregivers participated. "Belief in caregiving" appeared to be the core phenomenon. This reflects the caregivers' conviction that providing care is an important value, which becomes the will power and source of their strength. It is a combination of spiritual and religious, value and motivation to care, and is influenced by contextual factors. It influences actions: coping mechanisms, sharing tasks, and making sacrifices. Social support influences the process of the core phenomenon and the actions of the caregivers. Both positive and negative experiences were identified.
conclusionWe developed a model of family caregivers' experiences from a country where caregiving is deeply rooted in religion and culture. The model might also be useful in other cultural contexts. Our model shows that the spiritual domain, not only for the patient but also for the family caregivers, should be structurally addressed by professional caregivers.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.