Evidence map›Paper›PMID 30909901›Full record

ArticleBMC palliative care2019

Multiple and multidimensional life transitions in the context of life-limiting health conditions: longitudinal study focussing on perspectives of young adults, families and professionals.

Divya Jindal-Snape, Bridget Johnston, Jan Pringle, Timothy B Kelly, Rosalind Scott, Libby Gold, Raymond Dempsey

Abstract read
In one paragraph

Article in BMC palliative care, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Divya Jindal-SnapeSchool of Education and Social Work, University of Dundee, Dundee, DD1 4HN, Scotland. d.jindalsnape@dundee.ac.uk.ORCID http://orcid.org/0000-0003-3851-3381
Bridget JohnstonUniversity of Glasgow, Glasgow, UK.
Jan PringleUniversity of Edinburgh, Edinburgh, UK.
Timothy B KellyUniversity of Dundee, Dundee, UK.
Rosalind ScottUniversity of Dundee, Dundee, UK.
Libby GoldChildren's Hospice Association Scotland, Glasgow, UK.
Raymond DempseyIndependent Counselling Psychologist, Glasgow, UK.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundThere is a dearth of literature that investigates life transitions of young adults (YAs) with life-limiting conditions, families and professionals. The scant literature that is available has methodological limitations, including not listening to the voice of YAs, collecting data retrospectively, at one time point, from one group's perspective and single case studies. The aim of this study was to address the gaps found in our literature review and provide a clearer understanding of the multiple and multi-dimensional life transitions experienced by YAs and significant others, over a period of time.

methodsThis qualitative study used a longitudinal design and data were collected using semi-structured interviews over a 6-month period at 3 time points. Participants included 12 YAs with life-limiting conditions and their nominated significant others (10 family members and 11 professionals). Data were analysed using a thematic analysis approach.

resultsLife transitions of YA and significant others are complex; they experience multiple and multi-dimensional transitions across several domains. The findings challenge the notion that all life transitions are triggered by health transitions of YAs, and has highlighted environmental factors (attitudinal and systemic) that can be changed to facilitate smoother transitions in various aspects of their lives.

conclusionsThis study makes a unique and significant contribution to literature. It provides evidence and rich narratives for policy makers and service providers to change policies and practices that are in line with the needs of YAs with life-limiting conditions as they transition to adulthood. Families and professionals have specific training needs that have not yet been met fully.

Indexed as

Cost of IllnessPerceptionAdolescentFamilyFemaleHealth PersonnelHumansInterviews as TopicLongitudinal StudiesMaleQualitative ResearchQuality of LifeTransitional CareYoung AdultFamiliesLife-limiting conditionsLife transitionsMulti-dimensional transitionsMultiple and multi-dimensional transitions (MMT) theoryMultiple transitionsProfessionalsYoung adults

Identifiers

PMID30909901
PMCPMC6434813

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.