ArticleHealth expectations : an international journal of public participation in health care and health policy2019
The impact of severe asthma on patients' autonomy: A qualitative study.
Article in Health expectations : an international journal of public participation in health care and health policy, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 1 of them a synthesis that pooled it.
What it found
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Who cites it
16 citing papers in PubMed, 1 synthesis or guideline pooled it, 30 citations in OpenAlex.
- The experience of shared decision-making for people with asthma: A systematic review and metasynthesis of qualitative studies.Health expectations : an international journal of public participation in health care and health policy · 2024Pooled it
- "So I call myself healthy": a qualitative study on health perceptions and healthcare experiences in older adults with multimorbidity.BMC primary care · 2025Article
- Descriptive qualitative study of breathlessness and its management of Turkish individuals with self-reported heart failure.BMJ open · 2024Article
- "Asthma is a very bully disease" - patient experiences of living with chronic respiratory diseases in Cape Town, South Africa.International journal for equity in health · 2023Article
- Development and linguistic validation of the Korean version of the Severe Asthma Questionnaire.Journal of thoracic disease · 2023Article
- Assessing the Impact of Health Education Intervention on Asthma Knowledge, Attitudes, and Practices: A Cross-Sectional Study in Erbil, Iraq.Healthcare (Basel, Switzerland) · 2023Article
- Epidemiology of Asthma: Prevalence and Burden of Disease.Advances in experimental medicine and biology · 2023Article
- Article
- Patients' experiences of asthma exacerbation and management: a qualitative study of severe asthma.ERJ open research · 2021Article
- An Approach for Thoracic Syndrome Classification with Convolutional Neural Networks.Computational and mathematical methods in medicine · 2021Article
- Evaluation and Management of Difficult-to-Treat and Severe Asthma: An Expert Opinion From the Korean Academy of Asthma, Allergy and Clinical Immunology, the Working Group on Severe Asthma.Allergy, asthma & immunology research · 2020Review
- The capacity of schizophrenia and bipolar disorder individuals to make autonomous decisions about pharmacological treatments for their illness in real life: A scoping review.Health science reports · 2020Article
- 'It is like learning how to live all over again' A systematic review of people's experiences of living with a chronic illness from a self-determination theory perspective.Health psychology and behavioral medicine · 2020Review
- The impact of severe asthma on patients' autonomy: A qualitative study.Health expectations : an international journal of public participation in health care and health policy · 2019Article
- Treatment Patterns of Monoclonal Antibodies in Patients With Severe Uncontrolled Asthma Treated by Pulmonologists in Spain.Open respiratory archivesArticle
- Concept of older person autonomy: phenomenological study of the opinion of specialist nurses.Porto biomedical journalArticle
Corrections and comments
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Authors and funding
4 authors at 2 institutions in 2 countries.
Funding
Abstract
backgroundPeople living with severe asthma may have ongoing debilitating symptoms despite high-dose treatment. Clinical guidelines for severe asthma recommend concepts such as patient centeredness, shared decision making and self-management, at the heart of which lies autonomy.
objectiveThis study aimed to explore the role of autonomy in patients' narratives about their experiences of living with and managing severe asthma.
methodsIn-depth semi-structured interviews were video- and/or audio-recorded and transcribed. Data were categorized using a hybrid approach to analysis incorporating both inductive and deductive methods, informed by the self-determination construct of autonomy. Analysis and comparison across and within categories were conducted to develop final themes.
resultsTwenty-nine face-to-face interviews, lasting 1.5-4 hours, were conducted across Australia. Patients' autonomy was enacted or challenged in a range of situations, such as interacting with health-care providers, maintaining employment, managing symptoms, and dealing with threats to self-identity. Two main themes were discerned from the analysis: (a) the desire to live an "unconstrained" life; and (b) preservation of self-identity.
conclusionOur findings suggest that autonomy is broader than conventional medical concepts such as decision making and information seeking. Future research should consider these findings when developing and implementing patient-driven self-management interventions for those living with severe asthma.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.