ArticleBioPsychoSocial medicine2019
Psychosocial factors related with caregiver burden among families of children with chronic conditions.
Article in BioPsychoSocial medicine, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 59 papers, 2 of them syntheses that pooled it.
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Who cites it
59 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Impact of Atopic Dermatitis on Adolescents and Families: A Mixed-Method Systematic Review.Journal of advanced nursing · 2025Pooled it
- Pooled it
- Maternal Depressive Risk in Prenatal versus Postnatal Surgical Closure of Myelomeningocele: Associations with Parenting Stress and Child Outcomes.Fetal diagnosis and therapy · 2021Trial
- Review
- Caregiver burden experienced by mothers of infants who are HIV exposed uninfected compared to infants HIV unexposed: A prospective cohort study in Worcester, South Africa.Journal of tropical pediatrics · 2026Article
- Article
- Do Rural-Urban Disparities Translate into Nursing Complexity at Hospital Admission? Evidence from a Single Tertiary-Care Pediatric Hospital in Italy.Children (Basel, Switzerland) · 2026Article
- Quality of Life and Mental Health Among Families Caring for Children with Medical Complexity: A Scoping Review.Healthcare (Basel, Switzerland) · 2026Review
- "It's a journey": Psychosocial perspectives on parenting a young child with esophageal atresia.Pediatric surgery international · 2026Article
- Psychosocial Aspects of Caregiving That Influence Stress and Burden Among Parents of Children With Type 1 Diabetes.Nursing open · 2026Article
- Parents' experiences of condition management in children born with esophageal atresia-tracheoesophageal fistula during their early childhood.Orphanet journal of rare diseases · 2026Article
- Families caring for children living with HIV/AIDS: male care burden and poor health outcomes in a low socioeconomic context of Ghana.BMC public health · 2026Article
- The relationship between stress, anxiety, and health literacy in parents of children with chronic gastroenterological diseases: a multi-center cross-sectional study.BMC public health · 2025Article
- Levels of anxiety, social support and coping strategies of family members of children with acute leukemia: a cross-sectional study.BMC pediatrics · 2025Article
- Qualitative Experiences and Depression/Anxiety Scores in Parents of Children With Cystic Fibrosis Transmembrane Conductance Regulator Related Metabolic Syndrome.Pediatric pulmonology · 2025Article
- Stress and Burden Experienced by Parents of Children with Type 1 Diabetes-A Qualitative Content Analysis Interview Study.Children (Basel, Switzerland) · 2025Article
- Social contextual factors, social support and accessibility of social services in the health and life satisfaction of family caregivers in Hong Kong.BMC public health · 2025Article
- A real-world analysis of the impact of X-linked myotubular myopathy on caregivers in the United States.Orphanet journal of rare diseases · 2025Article
- Social support for the chronically ill during lockdown. Qualitative research in the COVID-19 pandemic.Sociology of health & illness · 2025Article
- Gender equality in caregiver attendance for children with chronic diseases: a Swedish longitudinal observational study.BMJ public health · 2025Article
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Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThe impact of looking after children who live with complex chronic conditions is a growing public health issue. However, it is unclear whether sociodemographic and psychosocial variables can be used to predict the burden on the caregiver and how the profiles of families of children with chronic diseases are defined and structured. The objective of this study was to identify multivariate sociodemographic and psychosocial variables as well as sociocultural and familial factors to analyze the caregiver burden of family caregivers of children with chronic diseases.
methodsA cross-sectional study was conducted involving 416 family caregivers of children with chronic diseases at the National Institute of Health in Mexico City. The participants responded to a questionnaire on sociodemographic variables and a battery of 7 instruments that examined caregiver burden, family support, parental stress, anxiety, support networks, family functioning, historic-psycho-socio-cultural premises and the World Health Organization Well-Being Index
resultsA multivariate analysis using hierarchical multiple regression models showed that the variables included in the psychosocial and sociodemographic profile as a whole explained 40% of the variance in caregiver burden, taking sociocultural historical premises, stressors and anxiety into account as positive individual predictors. Negative individual predictors for caregiver burden included upper secondary education, social support networks, family support, family functioning and well-being. The sociodemographic profiles of family caregivers were as follows: female (81.7%); mean age, 31.7 years (standard deviation [SD], 8 years); married (79.3%); nuclear family (60%); basic education (62.7%); unpaid work (66.3%); and a daily household income of approximately 4 USD (61.1%).
conclusionsThe caregiver burden of family caregivers of children with chronic diseases is defined and structured based on personal, family, and sociocultural factors. These features provide evidence to conduct research and implement intervention strategies with regard to families facing adversity, risk and vulnerability during a child's disease.
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