ArticleJournal of the American Society of Nephrology : JASN2019
Improving CKD-Specific Patient-Reported Measures of Health-Related Quality of Life.
Article in Journal of the American Society of Nephrology : JASN, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
16 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Dialysis or kidney transplantation in older adults? A systematic review summarizing functional, psychological, and quality of life-related outcomes after start of kidney replacement therapy.International urology and nephrology · 2022Pooled it
- Structured Multidisciplinary Care for Clinically Complex Kidney Transplant Recipients: A 12-Month Single-Center Cohort on Multidimensional Outcomes.Journal of transplantation · 2026Article
- The QDIS-7: using one scale to measure the disease-specific quality-of-life impact of different medical conditions.Scientific reports · 2025Article
- Insights Into Health-Related Quality of Life of Kidney Transplant Recipients: A Narrative Review of Associated Factors.Kidney medicine · 2025Review
- Translation and Validation Testing of the Constipation-Related Quality of Life Scale for Use in Japan.Cureus · 2023Article
- Validation of a new instrument for measuring disease-specific quality of life: A pilot study among patients with chronic kidney disease and hyperkalemia.Annals of clinical epidemiology · 2023Article
- Assessment of Health-Related Quality of Life, Medication Adherence, and Prevalence of Depression in Kidney Failure Patients.International journal of environmental research and public health · 2022Article
- Improving multimorbidity measurement using individualized disease-specific quality of life impact assessments: predictive validity of a new comorbidity index.Health and quality of life outcomes · 2022Article
- Referral criteria for chronic kidney disease: implications for disease management and healthcare expenditure-analysis of a population-based sample.BMC nephrology · 2022Article
- Impact of the COVID-19 pandemic on symptoms of anxiety and depression and health-related quality of life in older patients with chronic kidney disease.BMC geriatrics · 2021Article
- Clinical events and patient-reported outcome measures during CKD progression: findings from the Chronic Renal Insufficiency Cohort Study.Nephrology, dialysis, transplantation : official publication of the European Dialysis and Transplant Association - European Renal Association · 2021Article
- Determinants of patient activation and its association with cardiovascular disease risk in chronic kidney disease: A cross-sectional study.Health expectations : an international journal of public participation in health care and health policy · 2021Article
- The renal replacement therapy landscape in 2030: reducing the global cardiovascular burden in dialysis patients.Nephrology, dialysis, transplantation : official publication of the European Dialysis and Transplant Association - European Renal Association · 2020Review
- Patient-Reported Outcome Measures for Adults With Kidney Disease: Current Measures, Ongoing Initiatives, and Future Opportunities for Incorporation Into Patient-Centered Kidney Care.American journal of kidney diseases : the official journal of the National Kidney Foundation · 2019Review
- Patient-Reported Outcomes: Toward Better Measurement of Patient-Centered Care in CKD.Journal of the American Society of Nephrology : JASN · 2019Article
- Expanding the Patient's Voice in Nephrology with Patient-Reported Outcomes.Journal of the American Society of Nephrology : JASN · 2019Article
Corrections and comments
- Commented on by
Authors and funding
4 authors.
Funding
Abstract
backgroundPatient-reported outcome measures that are more practical and clinically useful are needed for patients with CKD. We compared a new CKD-specific quality-of-life impact scale (CKD-QOL) with currently used measures.
methodsPatients (
resultsKDQOL-36 and CKD-QOL measures generally discriminated better than generic SF-12v2 measures. The pattern of variances across CKD-specific tests comparing validity favored CKD-QOL two-fold over KDQOL-36. Two RV test results confirmed CKD-QOL improvements over the referent KDQOL scale. Results for static and CAT CKD-QOL forms were similar. SF-12 Physical and KDQOL-36 Symptoms scores worsened with increasing comorbid condition counts.
conclusionsOverall, compared with the KDQOL-36, the new approach to summarizing CKD-specific QOL impact performed better across multiple tests of validity. CAT surveys were more efficient than static surveys.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.