Evidence map›Paper›PMID 30898114›Full record

ArticleBMC health services research2019

Telephone-based aftercare groups for family carers of people with dementia: study protocol of the Talking Time - REHAB project.

Martin Berwig, Susanne Lessing, Ruth Deck

Open access · goldAbstract readClinical Trial Protocol
In one paragraph

Article in BMC health services research, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed, 1 pooled it
2.5field-weighted citation impact, top 11% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 1 synthesis or guideline pooled it, 17 citations in OpenAlex.

  1. Pooled it
  2. Trial
  3. Trial
  4. Article
  5. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors at 3 institutions in 1 country.

Martin BerwigClinic for Cognitive Neurology, Medical Faculty, University of Leipzig, Leipzig, Germany. Martin.Berwig@medizin.uni-leipzig.de.ORCID http://orcid.org/0000-0003-4322-9780
Susanne LessingClinic for Cognitive Neurology, Medical Faculty, University of Leipzig, Leipzig, Germany.
Ruth DeckInstitute for Social Medicine and Epidemiology, University of Lübeck, Lübeck, Germany.
University and Rehabilitation Clinics Ulm · DEUniversity Hospital Leipzig · DEUniversity of Lübeck · DE

Funding

Innovations fond funding programme of the Joint National Committee (Gemeinsamer Bundesausschuss, G-BA) 01VSF17029
6 · The paper itself

Abstract

backgroundMore than one million people in Germany live with dementia. Most of these people are cared for at home in the family setting. Supporting and caring for people with dementia is time-consuming, and family carers often have high stress levels and are at an increased risk of becoming physically and mentally ill. Medical rehabilitation (rehab) helps to relieve family carers and provide them with strategies to cope with stress. The aim of this study is to improve the sustainability of a multimodal rehab program for family carers of people with dementia. RESEARCH QUESTION: can the effects of this rehab be maintained through telephone-based aftercare groups following the rehab program?

methodsA prospective randomized controlled longitudinal trial is performed. The intervention group (IG) participates in telephone-based aftercare groups; the control group (CG) receives treatment as usual. For evaluation, a mixed-methods approach is used. The effects of the intervention are quantitatively evaluated by written questionnaires at four measuring points (pre- and post-rehab, as well as 6 and 12 months after the end of rehab). PRIMARY OUTCOME: participation (IMET). SECONDARY OUTCOMES: Depressive Mood State CES-D, General Complaints SCL-90-R, Subjective Quality of Life WHOQUOL-BREF, Social Support F-SozU, performance in different areas of life, single scales, and support offers (single items). The intervention process is evaluated through qualitative interviews and focus groups with regard to the acceptance of and satisfaction with the aftercare offered; in addition, a health economic evaluation is performed using the EQ-5D questionnaire. Rehabilitants are included in the study (N = 103 each in the IG and CG) who, accompanied by their family members with dementia, participate in the rehab measure in Ratzeburg. The IG participates monthly in 6 telephone aftercare groups over a period of 6 months. Typical stress situations are discussed and worked on. DISCUSSION: Upon successful evaluation, the offer to participate in telephone-based aftercare groups can be firmly established in the participating rehab clinic. Through minor adjustments, the offer would also be suitable for carers of physically ill people and for non-nursing-specific rehabilitation indications.

trial registrationGerman Clinical Trials Register: DRKS00013736 , May 14, 2018.

Indexed as

Adaptation, PsychologicalAftercareCaregiversCost-Benefit AnalysisDementiaDepressionFamilyFemaleGermanyHumansLongitudinal StudiesMalePersonal SatisfactionProspective StudiesQuality of LifeRandomized Controlled Trials as TopicAftercare groupsDementiaFamily carersParticipationPsycho-social interventionSocial supportTelephone-based

Identifiers

PMID30898114
PMCPMC6427887
OpenAlexW2946096330

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.