ArticleHospital pediatrics2019
Parent Perceptions of Real-time Access to Their Hospitalized Child's Medical Records Using an Inpatient Portal: A Qualitative Study.
Article in Hospital pediatrics, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
16 citing papers in PubMed.
- Parental Perspectives on Continuous Pulse Oximetry Use in Bronchiolitis Hospitalizations.Pediatrics · 2020Trial
- Patient Portal Use and Care Utilization Among Hospitalized Children.Hospital pediatrics · 2026Article
- A multicenter randomized trial to improve family clinical note access and outcomes for hospitalized children: The Bedside Notes study protocol.Journal of hospital medicine · 2025Article
- Perspectives of Spanish-Speaking Caregivers on Pediatric Patient Portal Use.Applied clinical informatics · 2025Article
- Adolescent and parental proxy online record access: analysis of the empirical evidence based on four bioethical principles.BMC medical ethics · 2025Article
- Electronic Communication Between Children's Caregivers and Health Care Teams: Scoping Review on Parental Caregiver's Perceptions and Experience.JMIR pediatrics and parenting · 2024Article
- Re-designing inpatient nursing notes shared with families: an opportunity to enhance family-centered care delivery.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2024Article
- Variation in pediatric and adolescent electronic health data sharing practices under the 21st Century Cures Act.Journal of the American Medical Informatics Association : JAMIA · 2023Article
- Article
- Views, Use, and Experiences of Web-Based Access to Pediatric Electronic Health Records for Children, Adolescents, and Parents: Scoping Review.Journal of medical Internet research · 2022Article
- In Anticipation of Sharing Pediatric Inpatient Notes: Focus Group Study With Stakeholders.Journal of participatory medicine · 2022Article
- BedsideNotes: Sharing Physicians' Notes With Parents During Hospitalization.Hospital pediatrics · 2021Article
- Stakeholder Perspectives in Anticipation of Sharing Physicians' Notes With Parents of Hospitalized Children.Academic pediatrics · 2021Article
- Provider Experiences With Offering Families Bedside Health Record Access Across a Children's Hospital.Hospital pediatrics · 2020Article
- Designing Inpatient Portals to Support Patient Agency and Dynamic Hospital Experiences.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2020Article
- Proxy use of patient portals on behalf of children: Federally Qualified Health Centers as a case study.Digital healthArticle
Corrections and comments
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Authors and funding
7 authors.
Funding
Abstract
BACKGROUND AND
objectivesEngaging with parents in care improves pediatric care quality and patient safety; however, parents of hospitalized children often lack the information necessary to effectively participate. To enhance engagement, some hospitals now provide parents with real-time online access to information from their child's inpatient medical record during hospitalization. Whether these "inpatient portals" provide benefits for parents of hospitalized children is unknown. Our objectives were to identify why parents used an inpatient portal application on a tablet computer during their child's hospitalization and identify their perspectives of ways to optimize the technology.
methodsSemistructured in-person interviews were conducted with 14 parents who were given a tablet computer with a commercially available inpatient portal application for use throughout their child's hospitalization. The portal included vital signs, diagnoses, medications, laboratory test results, patients' schedule, messaging, education, and provider pictures and/or roles. Interviews were audio recorded and transcribed and continued until reaching thematic saturation. Three researchers used an inductive approach to identify emergent themes regarding why parents used the portal.
resultsFive themes emerged regarding parent motivations for accessing information within the portal: (1) monitoring progress, (2) feeling empowered and/or relying less on staff, (3) facilitating rounding communication and/or decision-making, (4) ensuring information accuracy and/or providing reassurance, and (5) aiding memory. Parents recommended that the hospital continue to offer the portal and expand it to allow parents to answer admission questions, provide feedback, and access doctors' daily notes.
conclusionsProviding parents with real-time clinical information during their child's hospitalization using an inpatient portal may enhance their ability to engage in caregiving tasks critical to ensuring inpatient care quality and safety.
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Registered trials
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