Evidence map›Paper›PMID 30882352›Full record

ArticleJMIR mHealth and uHealth2019

A Mobile-Based Mindfulness and Social Support Program for Adolescents and Young Adults With Sarcoma: Development and Pilot Testing.

Elizabeth Donovan, Sarah R Martin, Laura C Seidman, Lonnie K Zeltzer, Tara M Cousineau, Laura A Payne, Meredith Trant, Marjorie Weiman, Marla Knoll, Noah C Federman

Registry-linked trialOpen access · goldAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in JMIR mHealth and uHealth, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT03130751 (Mobile Self Management and Support for Adolescents and Young Adults With Cancer), which is not on this map. Cited by 19 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
19citing papers in PubMed, 2 pooled it
10.2field-weighted citation impact, top 2% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT03130751 nacompletednot on this map

Mobile Self Management and Support for Adolescents and Young Adults With Cancer

TypeinterventionalSponsorUniversity of California, Los AngelesRan2017 to 2017Enrolled20ConditionsSarcomaArmsPocket Coach for AYA with Cancer
3 · Its place in the literature

Who cites it

19 citing papers in PubMed, 2 syntheses or guidelines pooled it, 40 citations in OpenAlex.

  1. Pooled it
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  7. Psychological Outcomes in Adolescent and Young Adult Cancer Survivors.Journal of clinical oncology : official journal of the American Society of Clinical Oncology · 2024
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors at 3 institutions in 1 country.

Elizabeth DonovanDepartment of Psychology, College of Natural, Behavioral, and Health Sciences, Simmons University, Boston, MA, United States.ORCID 0000-0003-4759-4101
Sarah R MartinPediatric Pain and Palliative Care Program, Department of Pediatrics, David Geffen School of Medicine, University of California, Los Angeles, CA, United States.ORCID 0000-0002-3100-9839
Laura C SeidmanPediatric Pain and Palliative Care Program, Department of Pediatrics, David Geffen School of Medicine, University of California, Los Angeles, CA, United States.ORCID 0000-0003-1442-0981
Lonnie K ZeltzerPediatric Pain and Palliative Care Program, Department of Pediatrics, David Geffen School of Medicine, University of California, Los Angeles, CA, United States.ORCID 0000-0001-9306-9450
Tara M CousineauBodiMojo, Inc, Boston, MA, United States.ORCID 0000-0002-8555-4859
Laura A PaynePediatric Pain and Palliative Care Program, Department of Pediatrics, David Geffen School of Medicine, University of California, Los Angeles, CA, United States.ORCID 0000-0001-5999-9101
Meredith TrantBodiMojo, Inc, Boston, MA, United States.ORCID 0000-0002-3638-729X
Marjorie WeimanDepartment of Pediatrics, David Geffen School of Medicine, University of California, Los Angeles, CA, United States.ORCID 0000-0001-9226-6663
Marla KnollDepartment of Care Coordination, Mattel Children's Hospital, University of California, Los Angeles, CA, United States.ORCID 0000-0002-2242-5961
Noah C FedermanDepartment of Pediatrics, David Geffen School of Medicine, University of California, Los Angeles, CA, United States.ORCID 0000-0002-2627-6772
University of California, Los Angeles · USBodiMojo · USSimmons University · US

Funding

UCLA Clinical Translational Science InstituteUL1TR001881 · NCATS · UNIVERSITY OF CALIFORNIA LOS ANGELES · PI ARLEEN F. BROWN, ARASH NAEIM · 2016 to 2026
$118.1M
Self-Management and Support for Adolescents and Young Adults with CancerR43CA206666 · NCI · BODIMOJO, INC · PI DONOVAN, ELIZABETH ANNA, ZELTZER, LONNIE K · 2016 to 2016
$225k
A laboratory-based hypnosis intervention on psychophysiological markers of pain responsivity in adolescents with and without sickle cell diseaseF32HL139114 · NHLBI · UNIVERSITY OF CALIFORNIA LOS ANGELES · PI MARTIN, SARAH R · 2017 to 2020
$192k
NCATS NIH HHS UL1 TR001881NCI NIH HHS R43 CA206666NHLBI NIH HHS F32 HL139114
6 · The paper itself

Abstract

backgroundApproximately 70,000 adolescents and young adults (AYA) are diagnosed with cancer each year in the United States. Sarcomas carry a particularly high symptom burden and are some of the most common cancers among AYA. Recent work has documented significant levels of unmet needs among AYA with cancer, particularly the need for psychosocial support. Mobile technology may be a cost-effective and efficient way to deliver a psychosocial intervention to AYA with cancer and cancer survivors.

objectiveThe two aims of this study were to (1) develop a pilot version of a mobile-based mindfulness and social support program and (2) evaluate program usage and acceptability. An exploratory aim was to examine change in psychosocial outcomes.

methodsThirty-seven AYA with sarcoma or sarcoma survivors, parents, and health care providers participated in the study. Semistructured interviews were conducted with 10 AYA, parents of five of the adolescents, and six health care providers. Themes from the interviews helped to inform the development of a mobile-based mindfulness pilot program and a companion Facebook-based social support group. Twenty AYA consented to participate in a single-arm pre-post evaluation of the program; 17 downloaded the app and joined the Facebook group. Seven of these participants had participated in the semistructured interviews. Six additional health care providers consented to participate in the evaluation stage.

resultsOn average, participants completed 16.9 of the 28 unique sessions and used the mindfulness app for a mean 10.2 (SD 8.2) days during the 28-day evaluation period. The majority of participants (16/17) engaged in the social group and posted at least one reply to the moderator's prompts. The mean number of responses per person to the moderator of the social group was 15.2 of 31 (49%, range 0%-97%). Both AYA and health care providers responded positively to the Mindfulness for Resilience in Illness program and offered useful recommendations for improvements. Exploratory psychosocial analyses indicated there were no significant differences from pretest to posttest on measures of perceived social support, mindfulness, body image, or psychological functioning.

conclusionsThis study offers preliminary support for the feasibility and acceptability of a mobile-based mindfulness and Facebook-based social support program for AYA with sarcoma. The feedback from AYA and health care providers will assist in creating a fully developed intervention.

trial registrationClinicalTrials.gov NCT03130751; https://clinicaltrials.gov/ct2/show/NCT03130751.

Indexed as

Social SupportAdolescentCancer SurvivorsFemaleHumansMaleMindfulnessMobile ApplicationsProgram DevelopmentSarcomaadolescentscancermindfulnessmobile appsocial supportyoung adults

Identifiers

PMID30882352
PMCPMC6441858
OpenAlexW2922398957

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.