ArticleInternational journal of integrated care2019
Citizens as Active Participants in Integrated Care: Challenging the Field's Dominant Paradigms.
Article in International journal of integrated care, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
19 citing papers in PubMed.
- Living labs as catalysts for integrated primary care: insights from a comprehensive community survey and co-creative design of community-based prevention and primary care.BMC primary care · 2026Article
- The politics of integrating health systems and public programs: a review of political headwinds, tailwinds, and policy maker recommendations.European journal of public health · 2026Review
- Developing and applying the 'Participatory Research to Action Framework' for meaningful engagement of experts-by-experience in applied health services research: a case study approach.Research involvement and engagement · 2025Article
- Improving the maternity experience for Black, African, Caribbean and mixed-Black families in an integrated care system: a multigroup community and interprofessional co-production prioritisation exercise using nominal group technique.BMJ quality & safety · 2025Article
- Towards an integrative approach of healthcare: implementing positive health in three cases in the Netherlands.BMC health services research · 2024Article
- Tracking the Development of Community Engagement Over Time: Realist Qualitative Study.Journal of participatory medicine · 2024Article
- Ethical challenges and principles in integrated care.British medical bulletin · 2023Article
- How do clients with multiple problems and (in)formal caretakers coproduce integrated care and support? A longitudinal study on integrated care trajectories of clients with multiple problems.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- Article
- Exploring the Quality Paradigms in Integrated Care: The Need for Emergence and Reflection.International journal of integrated care · 2021Article
- Non-pharmaceutical Interventions and the Infodemic on Twitter: Lessons Learned from Italy during the Covid-19 Pandemic.Journal of medical systems · 2021Article
- Applying Elinor Ostrom's Design Principles to Guide Co-Design in Health(care) Improvement: A Case Study with Citizens Returning to the Community from Jail in Los Angeles County.International journal of integrated care · 2021Article
- Measuring the benefits of the integration of health and social care: qualitative interviews with professional stakeholders and patient representatives.BMC health services research · 2020Article
- Suitable Scales; Rethinking Scale for Innovative Integrated Care Governance.International journal of integrated care · 2020Article
- How does a Network Platform Work for Participating Actors Towards Integrated Care Governance? A Case Study of a Dutch Hospital Region.International journal of integrated careArticle
- Decision-Making Dilemmas within Integrated Care Service Networks: A Systematic Literature Review.International journal of integrated careArticle
- Guiding Principles for Transformation Towards Integrated Acute Care for Older Adults Close to Home: Lessons from Nine Dutch Regional Partnerships. A Realist Evaluation.International journal of integrated careArticle
- Transforming Integrated Care Through Co-production: A Systematic Review Using Meta-ethnography.International journal of integrated careArticle
- Participatory Action Research as a Driver for Health Promotion and Prevention: A Co-creation Process Between Professionals and Citizens in a Deprived Neighbourhood in the Hague.International journal of integrated careArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Policy makers, practitioners and academics often claim that care users and other citizens should be 'at the center' of care integration pursuits. Nonetheless, the field of integrated care tends to approach these constituents as passive recipients of professional and managerial efforts. This paper critically reflects on this discrepancy, which, we contend, indicates both a key objective and an ongoing challenge of care integration; i.e., the need to reconcile (1) the professional, organizational and institutional frameworks by which care work is structured with (2) the diversity and diffuseness that is inherent to pursuits of active user and citizen participation. By identifying four organizational tensions that result from this challenge, we raise questions about whose knowledge counts (lay/professional), who is in control (local/central), who participates (inclusion/exclusion) and whose interests matter (civic/organizational). By making explicit what so often remains obscured in the literature, we enable actors to more effectively address these tensions in their pursuits of care integration. In turn, we are able to generate a more realistic outlook on the opportunities, limitations and pitfalls of citizen participation.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.