Evidence map›Paper›PMID 30880372›Full record

ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2019

Decision-making in childhood cancer: parents' and adolescents' views and perceptions.

Eden G Robertson, Claire E Wakefield, Joanne Shaw, Anne-Sophie Darlington, Brittany C McGill, Richard J Cohn, Joanna E Fardell

Abstract read
PubMed Publisher
In one paragraph

Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 33 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
33citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

33 citing papers in PubMed, 2 syntheses or guidelines pooled it.

  1. Pooled it
  2. Pooled it
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  5. Animated videos for childhood cancer precision medicine: development and evaluation with parents and patients.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025
    Article
  6. Review
  7. Decision-making when a child with haematological malignancy relapses following haematopoietic stem cell transplantation: A meta-ethnographic review.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025
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  20. Medical experts and trusted confidants: parent perceptions of the clinician-parent relationship in childhood cancer.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2023
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Eden G RobertsonDiscipline of Pediatrics, School of Women's and Children's Health, UNSW Sydney, Kensington, NSW, Australia. eden.robertson@unsw.edu.au.ORCID http://orcid.org/0000-0001-9395-7896
Claire E WakefieldDiscipline of Pediatrics, School of Women's and Children's Health, UNSW Sydney, Kensington, NSW, Australia.
Joanne ShawPsycho-Oncology Co-operative Research Group (PoCoG), The University of Sydney, Camperdown, NSW, Australia.
Anne-Sophie DarlingtonFaculty of Health Sciences, University of Southampton, Southampton, United Kingdom.
Brittany C McGillDiscipline of Pediatrics, School of Women's and Children's Health, UNSW Sydney, Kensington, NSW, Australia.
Richard J CohnDiscipline of Pediatrics, School of Women's and Children's Health, UNSW Sydney, Kensington, NSW, Australia.
Joanna E FardellDiscipline of Pediatrics, School of Women's and Children's Health, UNSW Sydney, Kensington, NSW, Australia.

Funding

Cancer Institute NSW 10/TPG/1-13National Health and Medical Research Council APP1143767
6 · The paper itself

Abstract

purposeFew studies have addressed the way in which families of children with cancer make treatment decisions, and how we can meet parents' and young peoples' decisional involvement needs. We aimed to explore parents' and adolescents' views and perceptions of making medical decisions in pediatric oncology.

methodsWe conducted semi-structured interviews with 25 parents of children diagnosed with cancer in the past 12 months, and 5 adolescents diagnosed in the past 12 months. Our interview schedule was underpinned by Elwyn and Miron-Shatz's decision-making model. The model acknowledges the deliberation (process of coming to a decision) and determination (making a choice) phases of decision-making. We conducted a thematic analysis.

resultsOur findings indicate that information provision is not enough to facilitate parents' decision-making involvement. Many parents sought additional information to meet their individual needs and preferences. While many parents and young people desired decisional involvement, they trusted the doctors to make treatment decisions. Feelings of distress, inadequacy, and lack of choice impacted decision-making participation. Regardless, many parents in our study were satisfied with treatment decisions, but this was largely dependent on positive treatment outcomes.

conclusionOur study contributes to understanding how families of a child with cancer make treatment decisions. Families tend to rely on doctors to make treatment decisions, but often seek additional information to help them feel involved in the decision process. Findings highlight that decision-making in pediatric oncology should focus on involving families in the deliberation phase, rather than just determination of choice.

Indexed as

Decision MakingAdultFemaleHumansMaleMiddle AgedNeoplasmsQualitative ResearchDecision-makingExperiencesInformationParentsPediatricPreferencesQualitative

Identifiers

PMID30880372

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.