Evidence map›Paper›PMID 30870468›Full record

ArticlePloS one2019

Caring for trafficked and unidentified patients in the EHR shadows: Shining a light by sharing the data.

Sara H Katsanis, Elaine Huang, Amanda Young, Victoria Grant, Elizabeth Warner, Sharon Larson, Jennifer K Wagner

Open access · goldAbstract read
In one paragraph

Article in PloS one, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
6.9field-weighted citation impact, top 4% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 19 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 3 institutions in 1 country.

Sara H KatsanisInitiative for Science & Society, Duke University, Durham, North Carolina, United States of America.
Elaine HuangCenter for Translational Bioethics & Health Care Policy, Geisinger Health System, Danville, Pennsylvania, United States of America.
Amanda YoungCenter for Health Research, Geisinger Health System, Danville, Pennsylvania, United States of America.
Victoria GrantInitiative for Science & Society, Duke University, Durham, North Carolina, United States of America.
Elizabeth WarnerCenter for Translational Bioethics & Health Care Policy, Geisinger Health System, Danville, Pennsylvania, United States of America.
Sharon LarsonJefferson University College of Population Health, Philadelphia, Pennsylvania, United States of America.
Jennifer K WagnerCenter for Translational Bioethics & Health Care Policy, Geisinger Health System, Danville, Pennsylvania, United States of America.ORCID 0000-0002-2278-0306
Geisinger Health System · USDuke University · USJefferson College · US

Funding

Multidisciplinary Study of Race Appearance Ancestry Discrimination & PrejudiceR00HG006446 · NHGRI · GEISINGER CLINIC · PI WAGNER, JENNIFER KRISTIN · 2015 to 2017
$747k
NHGRI NIH HHS R00 HG006446
6 · The paper itself

Abstract

objectiveHealthcare providers have key roles in the prevention of, detection of, and interventions for human trafficking. Yet caring for trafficked persons is particularly challenging: patients whose identities are unknown, unreliable, or false could receive subpar care from providers delivering care in a vacuum of relevant information. The application of precision medicine principles and integration of biometric data (including genetic information) could facilitate patient identification, enable longitudinal medical records, and improve continuity and quality of care for this vulnerable patient population. Scant empirical data exist regarding healthcare system preparedness and care for the needs of this vulnerable population nor data on perspectives on the use and risks of biometrics or genetic information for trafficked patients.

methodsTo address this gap, we conducted mixed-methods research involving semi-structured interviews with key informants, which informed a subsequent broad survey of physicians and registered nurses.

resultsOur findings support the perception that trafficked persons obtain care yet remain unnoticed or undocumented in the electronic health record. Our survey findings further reveal that healthcare providers remain largely unaware of human trafficking issues and are inadequately prepared to provide patient-centered care for trafficked and unidentified patients.

conclusionMeaningful efforts to design and implement precision medicine initiatives in an inclusive way that optimizes impacts are unlikely to succeed without concurrent efforts to increase general awareness of and preparedness to care for trafficked persons. Additional research is needed to examine properly the potential utility for biometrics to improve the delivery of care for trafficked patients.

Indexed as

Electronic Health RecordsAdolescentAdultAgedContinuity of Patient CareDelivery of Health CareEmpathyFemaleHealth PersonnelHealth Services Needs and DemandHumansHuman TraffickingMaleMiddle AgedPatient-Centered CareYoung Adult

Identifiers

PMID30870468
PMCPMC6417704
OpenAlexW2922074949

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.