ArticlePloS one2019
Home care experience and nursing needs of caregivers of children undergoing congenital heart disease operations: A qualitative descriptive study.
Article in PloS one, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
17 citing papers in PubMed, 2 syntheses or guidelines pooled it, 40 citations in OpenAlex.
- Health-related quality of life and influencing factors in parents of children with congenital heart disease: a systematic review and meta-analysis.Frontiers in public health · 2025Pooled it
- Parental experiences of their infant's hospital admission undergoing cardiac surgery: A systematic review.Acta paediatrica (Oslo, Norway : 1992) · 2021Pooled it
- The Utility of a SMS Text Messaging Platform to Support Children and Families After Cardiac Surgery.Pediatric cardiology · 2026Article
- Integrating between cultural competence and humility: a qualitative study of Israeli pediatric cardiologists.International journal for equity in health · 2026Article
- Effect of family management styles on the outcomes of children with complex congenital heart disease after palliative surgery.Frontiers in pediatrics · 2025Article
- Muslim mothers' experiences in taking care of children with open heart surgery: A qualitative study in Southern Thailand.Belitung nursing journal · 2025Article
- Association of bundled care interventions in improving outcomes for pediatric patients with congenital heart disease: a retrospective clinical evaluation.Frontiers in pediatrics · 2025Article
- Knowledge, attitude and practice of pediatric healthcare staff towards the therapy for patients with congenital heart disease.BMC medical education · 2024Article
- Queens of hearts: Exploring the lived experiences of mothers caring for infants with complex congenital heart disease in Sri Lanka.Journal of health psychology · 2024Article
- Stress and Coping Factors Affecting Health-Related Quality of Life in Parents of Children with Congenital Heart Disease: An Integrative Review.Pediatric cardiology · 2024Review
- Development and validation of a questionnaire to measure the congenital heart disease of children's family stressor.Frontiers in public health · 2024Article
- Caregiving and Support Issues Identified by Parents of an Infant With Congenital Heart Disease for Interactive Problem-Solving.Research and theory for nursing practice · 2023Article
- Application of "Internet+" cognitive-behavioral intervention in caregivers of children with congenital heart disease undergoing elective surgery during the COVID-19 pandemic.American journal of translational research · 2023Article
- Accelerated Cardiac Aging in Patients With Congenital Heart Disease.Frontiers in cardiovascular medicine · 2022Review
- How do caregivers of children with congenital heart diseases access and navigate the healthcare system in Ethiopia?BMC health services research · 2021Article
- The Experience of Uncertainty in Mothers Caring for Children at Home after Palliative Heart Surgery.Indian journal of palliative careArticle
- Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
AIMS AND
objectivesTo explore the home care experiences of caregivers taking care of CHD children before and after cardiac surgery.
backgroundDespite the prevalence of congenital heart disease (CHD) in childhood, little is known about the experiences and impacts on the children and their caregivers after CHD diagnosis and surgery. Such knowledge is needed for meaningful support.
designA qualitative descriptive study.
methodsTwenty-two caregivers of CHD children undergoing cardiac surgery participated in semi-structured interviews at a University Children's Hospital in China. Data were collected by an experienced and trained interviewer. Qualitative content analysis was chosen to describe the experiences of the caregivers.
resultsCaregivers of CHD children experienced significant demands. After the children underwent their CHD operations, the caregivers experienced complex psychological feelings and excessive stress impacting upon theirlives. In addition, caregivers constantly adapted their roles with self-fulfillment in caring activities.
conclusionsCHD surgery has a major impact on the emotions and daily lives of children and their caregivers. This study offers a framework for understanding the importance of actively listening to caregivers so coping strategies can be implemented. RELEVANCE TO CLINICAL PRACTICE: Theexperiencesdescribed in this study contribute to a better understanding of the needs of caregivers whose children underwent CHD operations. They also provide valuable information to professional medical care staff that developfuture nursing assessments.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.