Evidence map›Paper›PMID 30867204›Full record

ArticleBMJ open2019

Receiving a prenatal diagnosis of Down syndrome by phone: a qualitative study of the experiences of pregnant couples.

Stina Lou, Kathrine Carstensen, Ida Vogel, Lone Hvidman, Camilla Palmhøj Nielsen, Maja Lanther, Olav Bjørn Petersen

Open access · goldAbstract read
In one paragraph

Article in BMJ open, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
0.7field-weighted citation impact, top 25% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 4 citations in OpenAlex.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 3 institutions in 1 country.

Stina LouCentral Denmark Region, DEFACTUM - Public Health and Quality Improvement, Aarhus N, Denmark.ORCID 0000-0001-6177-5780
Kathrine CarstensenCentral Denmark Region, DEFACTUM - Public Health and Quality Improvement, Aarhus N, Denmark.
Ida VogelCenter for Fetal Diagnostics, Aarhus University Hospital, Aarhus, Denmark.
Lone HvidmanDepartment of Obstetrics and Gynecology, Aarhus Universitetshospital, Aarhus, Denmark.
Camilla Palmhøj NielsenCentral Denmark Region, DEFACTUM - Public Health and Quality Improvement, Aarhus N, Denmark.
Maja LantherCentral Denmark Region, DEFACTUM - Public Health and Quality Improvement, Aarhus N, Denmark.
Olav Bjørn PetersenCenter for Fetal Diagnostics, Aarhus University Hospital, Aarhus, Denmark.
Aarhus University · DKCentral Denmark Region · DKAarhus University Hospital · DK

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectivesTo examine how pregnant couples experience receiving a prenatal diagnosis of Down syndrome (DS) by phone-a practice that has been routine care in the Central Denmark Region for years.

designQualitative interview study.

settingParticipants were recruited from hospitals in Central Denmark Region, Denmark.

participantsCouples who had received a prenatal diagnosis of DS by phone and decided to terminate the pregnancy. They were recruited from the obstetric department where the termination was undertaken. During the study period (February 2016 to July 2017), 21 semistructured, audio-recorded interviews were conducted by an experienced anthropologist. Interviews were conducted 4-22 weeks after the diagnosis and analysed using thematic analysis.

resultsA prearranged phone call was considered an acceptable practice. However, the first theme

conclusionA prearranged phone call was considered an acceptable and appropriate practice. However, some aspects of this practice (particularly related to the context of the call) showed to be less than optimal for the couples. To make sure that a diagnostic result is delivered in accordance with the couples' needs and requests, the context of the call could be addressed and agreed on in advance by physicians and couples.

Indexed as

Abortion, EugenicDecision MakingAdultDenmarkDown SyndromeEducational StatusFemaleHumansInterviews as TopicLife Change EventsMalePregnancyPregnant PeoplePrenatal DiagnosisQualitative ResearchSpousesantenatalfetal medicineprenatal diagnosisqualitative research

Identifiers

PMID30867204
PMCPMC6429881
OpenAlexW2921766198

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.