SynthesisBMC geriatrics2019
Needs and preferences of informal caregivers regarding outpatient care for the elderly: a systematic literature review.
Synthesis in BMC geriatrics, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 88 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
88 citing papers in PubMed, 2 syntheses or guidelines pooled it, 216 citations in OpenAlex.
- Older caregivers' responsibilities and strategies for their cohabiting partners living at home-a qualitative systematic literature review.Frontiers in public health · 2025Pooled it
- Experiences of informal caregivers after cardiac surgery: a systematic integrated review of qualitative and quantitative studies.BMJ open · 2019Pooled it
- Effectiveness of a supportive care program via a smartphone application on the quality of life and care burden among family caregivers of patients with major depressive disorder: a randomized controlled trial.BMC public health · 2024Trial
- Using the COM-B framework to elucidate facilitators and barriers of home-based pulmonary rehabilitation adherence among elderly lung cancer survivors in China: a qualitative study.BMC geriatrics · 2026Article
- The Development of a Web-Based Application to Support Informal Caregivers of Individuals With Head and Neck Cancer: Human-Centered Design Approach.JMIR human factors · 2026Article
- Invisible Pillars With Hidden Burdens: A Scoping Review on the Challenges of Informal Caregivers for Older Adults in Home-Based Palliative Care.Journal of palliative care · 2026Article
- Older people's preferences for elderly care mode in Northwest China: a multilevel analysis stratified by socioeconomic status.BMC geriatrics · 2026Article
- Effect of family caregiving on depression outcome among older European adults.SSM - population health · 2025Article
- Development and Evaluation of a Self-Assessment Tool for Family Caregivers: A Step Toward Empowering Family Members.Nursing reports (Pavia, Italy) · 2025Article
- [Use of digital information and support services by informal caregivers from the perspective of medical assessors : Results from a focus group study].Zeitschrift fur Gerontologie und Geriatrie · 2025Article
- What matters in end-of-life communication with nursing staff: an interview study among older people and their family caregivers.BMC nursing · 2025Article
- Addressing healthcare vulnerabilities in nursing homes : Insights from human rights monitoring in two Austrian provinces.Wiener klinische Wochenschrift · 2025Article
- Psychometric validation and cultural adaptation of the Chinese version of the CarerQol-7D instrument.Health and quality of life outcomes · 2025Article
- "Well, it's very doctor-related" - interprofessional communication and collaboration between GP practices and nurses in the ambulant setting: a qualitative study in southern Germany.BMC health services research · 2025Article
- Spouses' Experiences of Emotional and Existential Support When Caring for a Frail Partner Late in Life.International journal of older people nursing · 2025Article
- "What Do You Get? Nothing": A Qualitative Analysis of the Financial Impact of Family Caregiving for a Dying Relative at Home in Germany.Healthcare (Basel, Switzerland) · 2025Article
- The significance of a dementia diagnosis from the perspective of the family caregivers: a qualitative study.BMC health services research · 2025Article
- Long-Term Care Services and Supports Needed for Successful Aging-in-Place: A Critical Review.Annual review of public health · 2025Review
- The in- and outpatient health care use of patients with COPD before and after initiation of home care: a registry study from Norway.Scandinavian journal of primary health care · 2025Article
- Article
28 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundInformal caregivers are an essential pillar for ensuring and maintaining the outpatient care of the frail elderly. Due to demographic changes, including an increase in the number of people in need of care as well as changing social structures (full-time employment of women, increasing number of single households, etc.) these informal care structures are fraught by considerable challenges. To support and facilitate informal caregivers in their role of nursing, it is important to identify their preferences, needs, and thus create a preference-oriented system.
methodsA systematic review was conducted to identify preferences and needs regarding the organization of informal care. The database searches were performed by using EMBASE, Scopus and Dimdi.
resultsA total of 44 studies were included in the present review. Studies from 17 different countries provide broad international perspectives. Besides the preferences for long-term care structure, the following four principal topics were identified: (1) informational needs; (2) support needs; (3) organizational needs, and (4) needs for societal recognition.
conclusionTo meet the current challenges in the outpatient or home-based care of elders, it is essential to strengthen the role of informal caregivers. Therefore, it is necessary to adopt and further develop informal care structures according to the needs of informal caregivers. However, demographic, financial and cultural aspects of each country need to be considered as these may influence the preferences and needs of informal caregivers.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.