Evidence map›Paper›PMID 30866001›Full record

ArticleApplied clinical informatics2019

Effect of Sociodemographic Factors on Uptake of a Patient-Facing Information Technology Family Health History Risk Assessment Platform.

R Ryanne Wu, Rachel A Myers, Adam H Buchanan, David Dimmock, Kimberly G Fulda, Irina V Haller, Susanne B Haga, Melissa L Harry, Catherine McCarty, Joan Neuner and 5 more

Open access · bronzeAbstract read
In one paragraph

Article in Applied clinical informatics, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed
2.0field-weighted citation impact, top 14% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

8 citing papers in PubMed, 19 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

15 authors at 8 institutions in 1 country.

R Ryanne WuCenter for Applied Genomics and Precision Medicine, Department of Medicine, Duke University School of Medicine, Durham, North Carolina, United States.
Rachel A MyersCenter for Applied Genomics and Precision Medicine, Department of Medicine, Duke University School of Medicine, Durham, North Carolina, United States.
Adam H BuchananGenomic Medicine Institute, Geisinger, Danville, Pennsylvania, United States.
David DimmockRady Children's Institute for Genomic Medicine, San Diego, California, United States.
Kimberly G FuldaThe North Texas Primary Care Practice-Based Research Network and Family Medicine, University of North Texas Health Science Center, Fort Worth, Texas, United States.
Irina V HallerEssentia Institute of Rural Health, Essentia, Duluth, Minnesota, United States.
Susanne B HagaCenter for Applied Genomics and Precision Medicine, Department of Medicine, Duke University School of Medicine, Durham, North Carolina, United States.
Melissa L HarryEssentia Institute of Rural Health, Essentia, Duluth, Minnesota, United States.
Catherine McCartyUniversity of Minnesota Medical School, Duluth Campus, Duluth, Minnesota, United States.
Joan NeunerDepartment of Medicine, Medical College of Wisconsin, Milwaukee, Wisconsin, United States.
Teji Rakhra-BurrisCenter for Applied Genomics and Precision Medicine, Department of Medicine, Duke University School of Medicine, Durham, North Carolina, United States.
Nina SperberCenter for Applied Genomics and Precision Medicine, Department of Medicine, Duke University School of Medicine, Durham, North Carolina, United States.
Corrine I VoilsWilliam S. Middleton Memorial Veterans Hospital, Madison, Wisconsin, United States.
Geoffrey S GinsburgCenter for Applied Genomics and Precision Medicine, Department of Medicine, Duke University School of Medicine, Durham, North Carolina, United States.
Lori A OrlandoCenter for Applied Genomics and Precision Medicine, Department of Medicine, Duke University School of Medicine, Durham, North Carolina, United States.
Duke University · USEssentia Health · USChildren’s Institute · USGeisinger Neuroscience Institute · USMedical College of Wisconsin · USUniversity of Minnesota, Duluth · USUniversity of North Texas Health Science Center · USUniversity of Wisconsin–Madison · US

Funding

Implementation, Adoption, and Utility of Family History in Diverse Care SettingsU01HG007282 · NHGRI · DUKE UNIVERSITY · PI GINSBURG, GEOFFREY S, ORLANDO, LORI ANN · 2013 to 2018
$7.0M
NHGRI NIH HHS U01 HG007282
6 · The paper itself

Abstract

objectiveInvestigate sociodemographic differences in the use of a patient-facing family health history (FHH)-based risk assessment platform.

methodsIn this large multisite trial with a diverse patient population, we evaluated the relationship between sociodemographic factors and FHH health risk assessment uptake using an information technology (IT) platform. The entire study was administered online, including consent, baseline survey, and risk assessment completion. We used multivariate logistic regression to model effect of sociodemographic factors on study progression. Quality of FHH data entered as defined as relatives: (1) with age of onset reported on relevant conditions; (2) if deceased, with cause of death and (3) age of death reported; and (4) percentage of relatives with medical history marked as unknown was analyzed using grouped logistic fixed effect regression.

resultsA total of 2,514 participants consented with a mean age of 57 and 10.4% minority. Multivariate modeling showed that progression through study stages was more likely for younger (

conclusionA demographically diverse population was able to complete an IT-based risk assessment but there were differences in attrition by sociodemographic factors. More attention should be given to ensure end-user functionality of health IT and leverage electronic medical records to lessen patient burden.

Indexed as

DemographyInformation TechnologyMedical History TakingRisk AssessmentAge of OnsetCause of DeathFemaleHumansMaleMiddle Aged

Identifiers

PMID30866001
PMCPMC6415985
OpenAlexW2920960677

What OpenQuestion holds

Textmetadata
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.