ArticlePloS one2019
Long-term participation 7-8 years after stroke: Experiences of people in working-age.
Article in PloS one, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers, 2 of them syntheses that pooled it.
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Who cites it
17 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- The Experiences of Social Connection and Isolation in Adults With Acquired Brain Injury: A Qualitative Systematic Review and Metasynthesis.Health expectations : an international journal of public participation in health care and health policy · 2025Pooled it
- Pooled it
- Social participation in stroke survivors and its influencing factors: a latent profile analysis.BMC health services research · 2026Article
- Young stroke survivors' experiences and approaches to community reintegration: a descriptive qualitative study.BMC public health · 2025Article
- Article
- Stroke Survivors' Experiences of Sleep: A Hermeneutic Phenomenological Study.Nursing research and practice · 2025Article
- Five-year stroke prognosis. Influence of post-stroke delirium and post-stroke dementia on mortality and disability (Research Study - Part of the PROPOLIS Study).Neurological sciences : official journal of the Italian Neurological Society and of the Italian Society of Clinical Neurophysiology · 2024Article
- Stroke survivors' long-term participation in paid employment.Work (Reading, Mass.) · 2024Article
- Exploring the usability of a smartphone application to monitor fatigue and activity for people with acquired brain injury.The British journal of occupational therapy · 2023Article
- Perceived Community Participation and Associated Factors in People With Stroke.Archives of rehabilitation research and clinical translation · 2022Article
- Understanding factors contributing to participant satisfaction in stroke walking recovery clinical trials.Contemporary clinical trials communications · 2022Article
- Factors influencing sustainable employment of persons with acquired brain injury (ABI) or spinal cord injury (SCI): A qualitative study evaluating the perspective of health and work professionals.Frontiers in rehabilitation sciences · 2022Article
- Stroke survivors' experiences with rebuilding life in the community and exercising at home: A qualitative study.Nursing open · 2021Article
- Review
- Factors which Influence Risk Taking and the Evolution of Social-Identity in Stroke Narratives: A Thematic Synthesis.Behavioral sciences (Basel, Switzerland) · 2020Review
- Perspectives of working-age adults with aphasia regarding social participation.African journal of disability · 2020Article
- "My life after stroke through a camera lens"- A photovoice study on participation in Sweden.PloS one · 2019Article
Corrections and comments
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Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveTo enhance the understanding of long-term participation in working-aged people 7-8 years after stroke.
methodsThis study had a qualitative design, using a thematic analysis methodology. Eleven individuals took part in an in depth interview 7-8 years after a first time stroke. They had received care at the Sahlgrenska University Hospital in Gothenburg, and were recruited as a heterogenic sample with respect to age, gender, stroke severity and subtype.
resultsFrom the participants' experiences four themes emerged: "Returning to work after stroke"; "Working life 7-8 years after stroke"; "Social life 7-8 years after stroke"; and "A state of reorientation in life". Quotes about experienced participation in everyday life were summarized and presented as "Participation after stroke narratives". Participants chose to emphasize on work- and social life when describing situations of successful participation. Being included in the wider community and having a sense of purpose, when interacting with others, were factors that these narratives had in common. Participants had gradually become accustomed to a somewhat altered life situation. Some consequences after stroke were still considered frustrating in social or work situations. However, the importance of these issues had reduced and were no longer problematized.
conclusionsParticipants felt content with their everyday life in general, which was a principal and positive result of this study. Reaching a stage of acceptance seemed to be a complex and continuous struggle, and an individual approach in long-term rehabilitation would be valuable to support this personal process. More knowledge about what factors that facilitate participation in people of working-age many years after stroke is needed, so that more people can reach a state of positive identity and participation.
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