Evidence map›Paper›PMID 30865330›Full record

ArticleScandinavian journal of caring sciences2019

Accessibility, utilisation and acceptability of a county-based home care service for sick children in Sweden.

Charlotte Castor, Inger Kristensson Hallström, Kajsa Landgren, Helena Hansson

Open access · hybridAbstract read
In one paragraph

Article in Scandinavian journal of caring sciences, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.

0numbers the graph read from it
0cells of the map it votes in
9citing papers in PubMed
5.1field-weighted citation impact, top 5% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

9 citing papers in PubMed, 18 citations in OpenAlex.

  1. Article
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  5. The Childhood Cancer Centre Is Coming Home: Experiences of Hospital-Based Home Care.International journal of environmental research and public health · 2021
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  6. Observational
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors at 2 institutions in 2 countries.

Charlotte CastorDepartment of Health Sciences, Faculty of Medicine, Lund University, Lund, Sweden.ORCID https://orcid.org/0000-0002-9188-2461
Inger Kristensson HallströmDepartment of Health Sciences, Faculty of Medicine, Lund University, Lund, Sweden.
Kajsa LandgrenDepartment of Health Sciences, Faculty of Medicine, Lund University, Lund, Sweden.
Helena HanssonPaediatrics and Adolescent Medicine, Copenhagen University Hospital Rigshospitalet, København Ø, Denmark.
Lund University · SECopenhagen University Hospital · DK

Funding

Jonas Foundation F2017/468Lions Research Foundation LU20160423Mjölkdroppen Foundation LU20171219Region Skane REGSKANE-725451Swedish Childhood Cancer Foundation 2014-0064
6 · The paper itself

Abstract

backgroundHome care service (HCS) for sick children is a complex healthcare service, which can be organised in various models. Despite the possibility to support family everyday life, the accessibility and utilisation may still be limited. The aim of this study was to (i) determine characteristics in referrals to county-based HCS, (ii) determine characteristics of referred children and (iii) assess acceptability of parents and children in county-based HCS.

methodsData on characteristics of referrals and referred children were collected from medical records of children 0-17 years of age, referred to eight HCS units during 2015-2018. Data on parental and child overall experience, satisfaction of, safety with, and preference for care, were collected from parents by a questionnaire. Descriptive and comparative statistics were used to analyse the data.

resultsThree hundred and fifty-five referrals led to one or more periods of HCS for 171 children in various ages with a wide range of illnesses. Children with cancer (30%) composed the largest group and administration of intravenous antibiotics accounted for 56% of the care tasks. Seven per cent of the referrals were to palliative home care. Thirty-eight referrals of 34 children were refused. There was an uneven distribution of the indication for referral, acceptance rate and diagnoses of children among HCS units. Parents reported their and their child's experience with the HCS visit as highly positive and preferred home care to hospital care in over 96% of the HCS in 212 visits.

conclusionCounty-based HCS constitutes a supplement to hospital care for sick children with various illnesses through different stages of acute and long-term illness and at end of life, with high levels of acceptability. Few referrals and variation in referral characteristics and acceptance rate of referrals between HCS units led to unequal and inequitable accessibility and utilisation of HCS.

Indexed as

Patient Acceptance of Health CareAdolescentChildChild, PreschoolFemaleHome Care ServicesHumansInfantInfant, NewbornMaleReferral and ConsultationSwedenhome care servicepaediatricpreference for carereferralsatisfaction with careutilisation

Identifiers

PMID30865330
PMCPMC7432181
OpenAlexW2921707602

What OpenQuestion holds

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LicenceCC BY-NC
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.