ArticleClinical transplantation2019
Decision support needs of kidney transplant candidates regarding the deceased donor waiting list: A qualitative study and conceptual framework.
Article in Clinical transplantation, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
20 citing papers in PubMed, 1 synthesis or guideline pooled it, 45 citations in OpenAlex.
- The global survival rate of graft and patient in kidney transplantation of children: a systematic review and meta-analysis.BMC pediatrics · 2022Pooled it
- Vampire Problems in Pediatric Kidney Transplantation-Navigating Transformative Experiences and Informed Consent.Pediatric transplantation · 2026Article
- Knowledge, attitude, and practice toward medical nutritional therapy among patients with chronic kidney disease.Frontiers in nutrition · 2026Article
- Examining Transparency in Kidney Transplant Recipient Selection Criteria: Nationwide Cross-Sectional Study.JMIR AI · 2025Article
- Informing transplant candidate and donor education in living kidney donation: mapping educational needs through a rapid review.BMC nephrology · 2025Review
- Challenges and support needs among family caregivers involved in solid organ transplant care process: a scoping review protocol.BMJ open · 2025Article
- Behind the Healing: Exploring the Psychological Battles of Kidney Transplant Patients: A Qualitative Insight.Health science reports · 2025Article
- Technology-Enabled Remote Patient Monitoring and Education to Improve Kidney Transplant Knowledge, Access, and Post-Transplant Care: A Narrative Review.Current transplantation reports · 2025Article
- Factors Influencing the Information Support Provided by Health Care Professionals to Patients in a Dialysis Center Regarding Kidney Transplantation: A Nationwide Study.Transplant international : official journal of the European Society for Organ Transplantation · 2025Article
- Development of a patient-centered peer-mentoring program for kidney transplant patients: a qualitative study.Frontiers in psychology · 2025Article
- Understanding people's decisions when choosing or declining a kidney transplant: a qualitative evidence synthesis.BMJ open · 2023Article
- Kidney organ allocation: reducing discards.Current opinion in organ transplantation · 2023Review
- Decision-making Among Hepatitis C Virus-negative Transplant Candidates Offered Organs from Donors with HCV Infection.Transplantation direct · 2022Article
- Machine Learning Support for Decision-Making in Kidney Transplantation: Step-by-step Development of a Technological Solution.JMIR medical informatics · 2022Article
- Journey to Transplant: Developing a social support network counselling intervention to improve kidney transplantation.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- A Critical Role for Shared Decision-Making about Referral and Evaluation for Kidney Transplant.Kidney360 · 2022Article
- Patient and Clinician Perceptions of Informed Consent and Decision Making About Accepting KDPI > 85 Kidneys.Transplantation direct · 2022Article
- Identifying Needs and Barriers to Engage Family Members in Transplant Candidate Care.Progress in transplantation (Aliso Viejo, Calif.) · 2021Article
- African Americans' discussions about living-donor kidney transplants with family or friends: Who, what, and why not?Clinical transplantation · 2021Article
- Kidney Transplant Evaluation and Listing: Development and Preliminary Evaluation of Multimedia Education for Patients.Annals of transplantation · 2021Article
Corrections and comments
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Authors and funding
6 authors at 1 institution in 1 country.
Funding
Abstract
backgroundKidney transplant candidates face complex decisions about transplant options such as living donation or acceptance of lower quality kidneys. We sought to characterize knowledge and decision support needs regarding kidney transplant outcomes and options.
methodsWe conducted 10 interviews and four focus groups of 28 adult kidney transplant candidates from two centers in Minnesota. Transcripts were analyzed thematically using a grounded theory approach.
resultsWe identified four themes: First, candidates have a limited understanding of treatment options and demonstrate confusion or a lack of awareness about waiting list outcomes and prognosis. Second, candidates desired frank discussions about likely outcomes and individualized prognosis. Third, emotional barriers impact how patients make informed decisions. Finally, participants relied on the support of family and friends to help process information, and many favored the medical community engaging their family and friends in their medical decisions. These findings were incorporated into a conceptual model to support kidney transplant candidates in medical decision making.
conclusionsTransplant candidates had limited understanding about treatment options and outcomes on the kidney transplant waiting list. Individualized risk information and cognitive approaches that recognize how patients process information and balance competing risks may improve informed decision making.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.