Evidence map›Paper›PMID 30861199›Full record

ArticleClinical transplantation2019

How patients choose kidney transplant centers: A qualitative study of patient experiences.

Cory R Schaffhausen, Marilyn J Bruin, Warren T McKinney, Jon J Snyder, Arthur J Matas, Bertram L Kasiske, Ajay K Israni

Registry-linked trialAbstract read
In one paragraph

Article in Clinical transplantation, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT03610555 (Creating a Patient-centered Report Card for Solid Organ Transplant Candidates), which is not on this map. Cited by 14 papers.

0numbers the graph read from it
0cells of the map it votes in
14citing papers in PubMed
3.3field-weighted citation impact, top 9% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT03610555 nacompletednot on this map

Creating a Patient-centered Report Card for Solid Organ Transplant Candidates

TypeinterventionalSponsorAjay Israni, MDRan2016 to 2023Enrolled268ConditionsTransplantsArmsIntervention 1 - SRTR (age question 1st), Intervention 2 - SRTR (BMI question 1st), Intervention 3 - TCST (age question 1st), Intervention 4 - TCST (BMI question 1st)
3 · Its place in the literature

Who cites it

14 citing papers in PubMed, 23 citations in OpenAlex.

  1. Trial
  2. Article
  3. Article
  4. Article
  5. Listing at non-local transplant centers is associated with increased access to deceased donor kidney transplantation.American journal of transplantation : official journal of the American Society of Transplantation and the American Society of Transplant Surgeons · 2022
    Article
  6. Review
  7. Article
  8. Article
  9. Lung transplant waitlist outcomes in the United States and patient travel distance.American journal of transplantation : official journal of the American Society of Transplantation and the American Society of Transplant Surgeons · 2021
    Article
  10. Article
  11. Article
  12. Article
  13. Article
  14. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 3 institutions in 1 country.

Cory R SchaffhausenHennepin Healthcare Research Institute, Minneapolis, Minnesota.ORCID 0000-0003-1705-1560
Marilyn J BruinCollege of Design, University of Minnesota, Minneapolis, Minnesota.
Warren T McKinneyHennepin Healthcare Research Institute, Minneapolis, Minnesota.
Jon J SnyderDepartment of Epidemiology and Community Health, University of Minnesota, Minneapolis, Minnesota.
Arthur J MatasDepartment of Surgery, University of Minnesota, Minneapolis, Minnesota.
Bertram L KasiskeScientific Registry of Transplant Recipients, Hennepin Healthcare Research Institute, Minneapolis, Minnesota.
Ajay K IsraniDepartment of Epidemiology and Community Health, University of Minnesota, Minneapolis, Minnesota.ORCID 0000-0002-7607-0430
University of Minnesota · USHennepin Healthcare Research Institute · USUniversity of Minnesota System · US

Funding

NRSA Training CoreTL1TR002493 · NCATS · UNIVERSITY OF MINNESOTA · PI FULKERSON, JAYNE ALLYN · 2018 to 2022
$3.1M
Creating a patient-centered report card for solid organ transplant candidatesR01HS024527 · AHRQ · HENNEPIN HEALTHCARE RESEARCH INSTITUTE · PI ISRANI, AJAY K · 2016 to 2020
$1.3M
AHRQ HHS K12 HS026379AHRQ HHS R01 HS024527NCATS NIH HHS TL1 TR002493
6 · The paper itself

Abstract

Little is known about how patients make the critical decision of choosing a transplant center. In the United States, acceptance criteria, waiting times, and mortality vary significantly by geography and center. We sought to understand patients' experiences and perspectives when selecting transplant centers. We included 82 kidney transplant patients in 20 semi-structured interviews, nine focus groups with local candidates, and three focus groups with national recipients. Sites included two local transplant centers in Minneapolis, Minnesota, and national recipients from across the United States. Transcripts were analyzed by two researchers using a thematic analysis. Several themes emerged related to priorities and barriers when choosing a center. Patients were often unfamiliar with options, even with multiple local centers. Patients described being referred to a specific center by a trusted provider. Patients prioritized perceived reputation, comfort, and convenience. Insurance coverage was both a source of information and a barrier to options. Patients underestimated differences across centers and the effects on being waitlisted and receiving a transplant. Barriers in decision making included an overwhelming scope of information and difficulty locating information relevant to patients with unique medical needs. Informed decisions could be improved by the dissemination of understandable information better tailored to individual patient needs.

Indexed as

Choice BehaviorDecision MakingInsurance CoverageKidney TransplantationNeeds AssessmentPatient PreferenceAccess to InformationFemaleHealth Services AccessibilityHumansInterviews as TopicMaleMiddle AgedPrognosisQualitative ResearchTransplant Recipientscenterchoosingkidneyqualitativetransplantation

Identifiers

PMID30861199
PMCPMC6943941
OpenAlexW2921018139

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.