ArticleJournal of racial and ethnic health disparities2019
Caregiver Voices: Cross-Cultural Input on Improving Access to Autism Services.
Article in Journal of racial and ethnic health disparities, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. It is linked to trial NCT07571434 (Piloting Clinic-based Unstuck and On Target in Ecuador), which is not on this map. Cited by 97 papers, 5 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Piloting Clinic-based Unstuck and On Target in Ecuador
Who cites it
97 citing papers in PubMed, 5 syntheses or guidelines pooled it, 209 citations in OpenAlex.
- A Systematic Review of Help-Seeking Barriers for Racial-Ethnic Minority Caregivers Accessing Autism Diagnostic and Intervention Services.Journal of racial and ethnic health disparities · 2026Pooled it
- Using photovoice to engage underserved children with neurodevelopmental disorders and their caregivers in health research: a mixed methods systematic review.Frontiers in rehabilitation sciences · 2025Pooled it
- A Review of the Literature on the Multiple Forms of Stigmatization of Caregivers of Children with Autism Among Ethnic Minority Groups.Journal of racial and ethnic health disparities · 2024Pooled it
- Resting-state EEG power differences in autism spectrum disorder: a systematic review and meta-analysis.Translational psychiatry · 2023Pooled it
- Parental Perceptions of Autism Spectrum Disorder in Latinx and Black Sociocultural Contexts: A Systematic Review.American journal on intellectual and developmental disabilities · 2022Pooled it
- Virtual Interview Training Among BIPOC Autistic Transition-Age Youth: A Secondary Analysis of an Initial Effectiveness RCT.Journal of autism and developmental disorders · 2024Trial
- Supporting peer engagement for low-income preschool students with autism spectrum disorder during academic instruction: A pilot randomized trial.Autism : the international journal of research and practice · 2022Trial
- Exploring the Experiences of First Nations Caregivers of Autistic Children in Canada: A Qualitative Community-Based Participatory Research Study.Autism : the international journal of research and practice · 2026Article
- Reasons for nondisclosure of suicide ideation or attempts among adolescents from ethnoracially and socioeconomically diverse backgrounds with a recent suicidal episode.Journal of child psychology and psychiatry, and allied disciplines · 2026Article
- Access to Autism Behavioral Therapy Services: An Analysis of 2022-2023 National Survey of Children's Health Data.Journal of autism and developmental disorders · 2026Article
- Parent Support Group for Korean Immigrant Families of Individuals With Autism and Developmental Disabilities: Use of Academic-Community Partnership.American journal of speech-language pathology · 2026Article
- How Do Speech-Language Pathology Social Communication Interventions Incorporate the Strengths and Perspectives of Autistic Children and Their Families: A Scoping Review.Autism : the international journal of research and practice · 2026Article
- Universal Autism Screening in Early Learning Programs: A Feasibility Study.Children (Basel, Switzerland) · 2026Article
- Maternal And Paternal Differences in Parental Stress and Children's Autistic Features Among Parents of Preschool Autistic Children.Autism : the international journal of research and practice · 2026Article
- Predictors of Play Development at Home After Parent-Mediated Early Intervention for Autistic Preschool Children.Behavioral sciences (Basel, Switzerland) · 2026Article
- Black Caregiver Perspectives During a Developmental Diagnostic Interview.Journal of autism and developmental disorders · 2026Article
- "I'm His Voice": Parent Perspectives on Obtaining an Autism Diagnosis and Services and the Influence of Personal and Cultural Factors.Journal of autism and developmental disorders · 2026Article
- Differences in patient access to and utilization of caregiving services: a scoping review.BMC health services research · 2026Article
- A "Whole Child Approach": Parent Experiences with Acute Care Hospitalizations for Children with Autism Spectrum Disorder and Behavioral Health Needs.Journal of autism and developmental disorders · 2026Article
- "He Just Wants Someone to Hear Him and Listen to Him": Barriers and Facilitators to Autistic Youth with Anxiety Receiving Quality Mental Healthcare.Journal of autism and developmental disorders · 2026Article
37 more citing papers are in PubMed but not listed here.
Corrections and comments
- Erratum issued
Authors and funding
17 authors at 8 institutions in 2 countries.
Funding
Abstract
Decades of research have established that racial ethnic minority, low-income, and/or non-English speaking children with autism spectrum disorder (ASD) are diagnosed later than white children, and their families experience greater difficulty accessing services in the USA. Delayed access to timely diagnosis and early intervention may impact child outcomes and family quality of life. Despite their cognition of these disparities and their significant impact on the lives of those affected, explanations for the barriers experienced by underserved families are elusive, likely due to the complex interaction between structural and family factors. This study used qualitative methods to gather family and provider perspectives of perceived barriers and facilitators to obtaining an ASD diagnosis and accessing ASD-related services for underserved families. Themes from focus groups and interviews with families from three cultural groups (black, Hispanic/Latino, and Korean) and three primary languages (English, Korean, and Spanish) highlight specific barriers related to family, community, and systemic challenges as well as facilitators to accessing care for these populations. Family experiences are expanded upon with viewpoints from the providers who work with them. Recommendations are made for reducing disparities in the existing ASD service system including increasing professional, family, and community education; increasing culturally responsive care; improving provider-family partnerships; and addressing practical challenges to service access.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.