ArticleJournal of diabetes science and technology2019
State of the Science: A Scoping Review and Gap Analysis of Diabetes Online Communities.
Article in Journal of diabetes science and technology, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 51 papers, 5 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
51 citing papers in PubMed, 5 syntheses or guidelines pooled it, 104 citations in OpenAlex.
- A systematic literature review on how consumer and community involvement have shaped and influenced pre-pregnancy care interventions for women with diabetes.BMC pregnancy and childbirth · 2024Pooled it
- Impact of Digitally Enabled Peer Support Interventions on Diabetes Distress and Depressive Symptoms in People Living with Type 1 Diabetes: A Systematic Review.Current diabetes reports · 2024Pooled it
- When People With Chronic Conditions Turn to Peers on Social Media to Obtain and Share Information: Systematic Review of the Implications for Relationships With Health Care Professionals.Journal of medical Internet research · 2023Pooled it
- A New Taxonomy for Technology-Enabled Diabetes Self-Management Interventions: Results of an Umbrella Review.Journal of diabetes science and technology · 2022Pooled it
- Patients' Use of Social Media for Diabetes Self-Care: Systematic Review.Journal of medical Internet research · 2020Pooled it
- An Evaluation of Digital Health Tools to Support Multidisciplinary Teams in Managing Patients with Type 2 Diabetes.Journal of multidisciplinary healthcare · 2026Review
- Article
- Psychometric Properties of the Spanish Version of the Caregiver Contribution to Self-Care of Diabetes Inventory (CC-SCODI).Nursing reports (Pavia, Italy) · 2025Article
- The Need for Peer Support and Codesigned Services: A Qualitative Study to Understand Diabetes Education Program Needs of Adolescents With Type 1 Diabetes.Pediatric diabetes · 2025Article
- Preferences for Peer Support Amongst Families Engaged in Paediatric Screening Programmes: The Perspectives of Parents Involved in Screening for Type 1 Diabetes in Children Aged 3-13.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Development and Validation of a Measure for Seeking Health Information in the Diabetes Online Community: Mixed Methods Study.JMIR diabetes · 2024Article
- Experiences and Views of Young People and Health Care Professionals of Using Social Media to Self-Manage Type 1 Diabetes Mellitus: Thematic Synthesis of Qualitative Studies.JMIR pediatrics and parenting · 2024Article
- Use of Online Communities among People with Type 2 Diabetes: A Scoping Review.Current diabetes reports · 2024Article
- Help-Seeking, Support, and Engagement in Gestational Diabetes Mellitus Online Communities on Facebook: Content Analysis.JMIR formative research · 2024Article
- Supporting and Incentivizing Peer Leaders for an Internet-Based Private Peer Community for Youths With Type 1 Diabetes: Social Network and Directed Content Analysis.Journal of medical Internet research · 2023Article
- Technology-Mediated Support Among Siblings of Children with Cancer.Journal of adolescent and young adult oncology · 2023Article
- "A patient should not have to ask": Women's experiences of patient education about preconception care for type 2 diabetes.Patient education and counseling · 2023Article
- A Long-Term Evaluation of Facebook for Recruitment and Retention in the ENDIA Type 1 Diabetes Pregnancy-Birth Cohort Study.Journal of diabetes science and technology · 2023Article
- Are people with diabetes getting the support they need? Deficits between support desired and received from family and friends relates to poorer health.Patient education and counseling · 2023Article
- 'It's like a never-ending diabetes youth camp': Co-designing a digital social network for young people with type 1 diabetes.Health expectations : an international journal of public participation in health care and health policy · 2023Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
9 authors at 6 institutions in 2 countries.
Funding
Abstract
backgroundIndividuals with diabetes are using online resources to engage in diabetes online communities to find diabetes-related support and information. The benefits and consequences of DOC (diabetes online community) use are unclear. This scoping review aims to map existing research focused on organic DOCs in which individuals affected by diabetes are interacting with peers.
methodA scoping review was conducted to comprehensively report and synthesize relevant literature published prior to 2018. Attention was paid to variations in study design, DOC user and platform characteristics, and potential or actual benefits and consequences.
resultsOf the 14 486 titles identified, 47 articles met the inclusion criteria and were included in this scoping review. No overt definition of the DOC could be identified. Perceived or actual benefits associated with DOC use can be broadly categorized as clinical, behavioral, psychosocial and community outcomes. Perceived, potential, or actual consequences associated with DOC use were categorized as quality of information, risky behavior exploration, acute concerns, psychosocial, privacy, and inactivity.
conclusionsThe results of this review strongly suggest DOC use is highly beneficial with relatively few negative consequences. DOC use is an emerging area of research and research gaps exist. Future research should seek to identify benefits and consequences to DOC use in experimental trials.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.